The 21 Research Resource Act will expand and intensify Down syndrome programs of the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to create an infrastructure of Down syndrome tools, including a Down syndrome contract registry, Down syndrome research database, and Down syndrome biobank. These research resources will further strengthen the research being conducted on Down syndrome across the country and better equip our research community with the tools necessary to facilitate their research. This bill also establishes a Down Syndrome Consortium with NIH to facilitate the exchange of information and make research efforts more efficient by integrating the perspectives of key stake holders. Follow this link to the NDSS website for more information and to act.
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Chick-Fil-A Spirit Night 💙💛
When:
May 13, 2024 @ 4:00 pm – 7:00 pm
Where:
Chick-Fil-A, 4700 Edgmont Ave, Brookhaven, PA
Date: MONDAY, MAY 13, 2024 AT 4 PM – 7 PM Location: 4700 Edgmont Ave, Brookhaven, PA We had such a successful event in Springfield and received
2024 Family Weekend with LuMind & IDSC
When:
September 13, 2024 @ 3:30 pm – September 15, 2024 @ 10:30 am
Where:
Great Wolf Lodge
Dates: September 13-15, 2024 Where: Great Wolf Lodge locations across the U.S. and Canada. We’re excited to invite myDSC members to the LuMind IDSC Family
Celebrating Down Syndrome at Dave & Buster’s with Isabel Grace Photography 💙💛
When:
May 15, 2024 @ 5:00 pm – 8:00 pm
Where:
Dave & Buster’s Philadelphia, 325 N Christopher Columbus Blvd, Philadelphia, PA 19106
DATE: May 15, 2024 / TIME: 5-8pm / Location: Dave & Buster’s Philadelphia Join us for a special celebration hosted by Isabel Grace Photography at