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Upcoming Events

Aug
3
Thu
RSVP for Our Summer Picnic!!! @ Paxon Hollow Country Club
Aug 3 @ 6:00 pm – 9:00 pm
RSVP for Our Summer Picnic!!! @ Paxon Hollow Country Club
The annual summer picnic will be held on Thursday, August 3rd from 6-9PM at Paxon Hollow Country Club.

Please RSVP to Megan Califano at [email protected] by July 21st. As always, please respond responsibly.

EMAIL Megan
Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY

Oct
1
Sun
Happy Down Syndrome Awareness Month! 💙💛
Oct 1 all-day
Understanding SSI and SSDI Work Incentives and Benefits WEBNINAR
Oct 1 @ 6:31 pm – 7:31 pm

🚨 Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?

This webinar on 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟒𝐭𝐡 𝐚𝐭 𝟏:𝟎𝟎 𝐏𝐌 𝐄𝐓 will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! 💥

Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.

𝐓𝐡𝐢𝐬 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 𝐰𝐢𝐥𝐥 𝐧𝐨𝐭 𝐛𝐞 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝, so be sure to register today!

REGISTER TODAY

Nov
5
Sun
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 5 @ 9:30 am – 12:00 pm
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11

Location

1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

 

Description

Date of race: Sunday, November 5 , 2023

Course certification number: PA190003NP

Name of event: 5K Run for Homies With Bonus Chromies

 

Location of event: Ridley Creek State Park Area 11

Race Details: Please join us on Sunday, November 5, 2023 at Ridley Creek State Park (picnic Area 11) for the fifth annual 5K Run for Homies with Bonus Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Course Support: Due to Covid-19 there will not be any water stops

Date and time: Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Awards: Top 1-3 Male and Female; $150.00 to 1st place finisher,  $75.00 to 2nd place finisher,  $50.00 to 3rd place finisher

Swag: TShirt, Swag Bags, meal ticket for the Brothers Pizza Food Truck, Lighteous Photography for race day photos

****We cannot guarantee shirt sizes for participants registered after 10/26/2021****

Sponsorships Donations, and Volunteers: There are a number of ways to get involved in the 5K Run for Homies with Bonus Chromies.  Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits.  Volunteers, please register on this website.  Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance.  To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected]

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit http://www.delcodsig.org/

Pre-race packet pickup: Sunday, November 5, 2023 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking: Free Parking at Pavillion 11A & B

Other Information: Brothers Food Truck with be providing food for participants which is included with registration, Lighteous Photography will be providing race day photos!

Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Contact: Stephanie Sapp, [email protected], (484) 840-8663

 

Follow Us on Social Media and Invite Your Friends!!!

Click here for our Facebook Page

Click here for our Instagram Page

 

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.
1. The race will be capped at 200 runners to limit crowds.
2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
4. There will be rolling start times.
5. Awards will be based on chip time, including overall winners.
6. All volunteers tasked with serving the runners will be wearing masks.
7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 5 @ 9:30 am – 12:00 pm
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11

Location

1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

 

Description

Date of race: Sunday, November 5 , 2023

Course certification number: PA190003NP

Name of event: 5K Run for Homies With Bonus Chromies

 

Location of event: Ridley Creek State Park Area 11

Race Details: Please join us on Sunday, November 5, 2023 at Ridley Creek State Park (picnic Area 11) for the fifth annual 5K Run for Homies with Bonus Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Course Support: Due to Covid-19 there will not be any water stops

Date and time: Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Awards: Top 1-3 Male and Female; $150.00 to 1st place finisher,  $75.00 to 2nd place finisher,  $50.00 to 3rd place finisher

Swag: TShirt, Swag Bags, meal ticket for the Brothers Pizza Food Truck, Lighteous Photography for race day photos

****We cannot guarantee shirt sizes for participants registered after 10/26/2021****

Sponsorships Donations, and Volunteers: There are a number of ways to get involved in the 5K Run for Homies with Bonus Chromies.  Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits.  Volunteers, please register on this website.  Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance.  To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected]

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit http://www.delcodsig.org/

Pre-race packet pickup: Sunday, November 5, 2023 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking: Free Parking at Pavillion 11A & B

Other Information: Brothers Food Truck with be providing food for participants which is included with registration, Lighteous Photography will be providing race day photos!

Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Contact: Stephanie Sapp, [email protected], (484) 840-8663

 

Follow Us on Social Media and Invite Your Friends!!!

Click here for our Facebook Page

Click here for our Instagram Page

 

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.
1. The race will be capped at 200 runners to limit crowds.
2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
4. There will be rolling start times.
5. Awards will be based on chip time, including overall winners.
6. All volunteers tasked with serving the runners will be wearing masks.
7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

Nov
17
Fri
Invitation from member Sara Jane Wolff to a Parent Get Together.
Nov 17 @ 7:00 pm
Invitation from member Sara Jane Wolff to a Parent Get Together.

DATE: November 17, 2023
TIME: Starts at 7 pm
WHERE: GET Café / 246 Haverford Ave, Narberth, PA 19072

“There will be a parent get together November 17th at the GET Café at 7pm! Generally, we bring snacks/drinks to share–whatever you like.

Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.

It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! 😉

GET Café is located at 246 Haverford Avenue, Narberth, PA 19072.

Feel free rsvp on this post, Facebook message me, email or text.

[email protected] / 215-421-4375

Hope to see you there!!

EMAIL TO RSVP

Nov
30
Thu
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg
Nov 30 @ 9:30 am – 4:30 pm
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg

The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!

Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton

REGISTER TODAY

Feb
24
Sat
Best Buddies Inclusive Concert @ Emilie K. Asplundh Concert Hall
Feb 24 @ 2:00 pm – 3:30 pm
Best Buddies Inclusive Concert @ Emilie K. Asplundh Concert Hall

WCU Best Buddies is hosting our first ever inclusive and sensory friendly concert! Often, individuals with unique abilities and sensory needs are not able to attend/enjoy a concert, so we are hosting one that anyone and everyone can enjoy! The lights and sound will be sensory friendly, there will be a sensory area with fidgets and activities, dancing and singing along is not only allowed but encouraged, and we have several performers with disabilities. There will also be a raffle with some awesome prizes like gift cards and suite style Sixers tickets!

This event is open to anyone and is not limited to just Best Buddies! Tickets will be $15 ($5 if you come in a Best Buddies t-shirt) cash or Venmo at the door. Go to Facebook to learn more about this event.

Mar
21
Thu
World Down Syndrome Day Live Event with Sofia Sanchez
Mar 21 @ 2:00 pm
World Down Syndrome Day Live Event with Sofia Sanchez
DATE & TIME: March 21st at 2pm ET

Watch Sofia Sanchez’s Live Event on Scholastic StoryVoice on World Down Syndrome Day from anywhere! This event is a free, interactive, and SO much fun!!! Just log in and join Sofia as she reads from her new book YOU ARE BRAVE!!!! What better way to increase awareness about Down syndrome and how we tackle everyday with bravery!!!! 💙💛