Upcoming Events

Jun
6
Tue
Tampon Training Workshop – CHOP SPECIALTY CARE @ CHOP SPECIALTY CARE
Jun 6 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

CHOP SPECIALTY CARE
3550 Market St. 3rd Floor
Philadelphia, PA. 19104
June 6 – 5pm or 6pm
June 20 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Jun
9
Fri
Down To Box: June 9, 2023 @ Jabz Boxing
Jun 9 @ 5:45 pm – 6:45 pm
Down To Box: June 9, 2023 @ Jabz Boxing

🥊Down To Box Weekly Classes🥊
Come & Try a Class for Free!

It’s happening!!!! Weekly classes are starting this upcoming weekend!! Who’s in?! Join us for fitness and fun for individuals of all abilities!
Launching June 9, 2023 / Sessions go through the end of August!
Fri: 5:45-6:45pm, Ages 13+
Location: Jabz Boxing, 3488 Concord Rd, Aston, PA 19014
To sign up or for more information, contact us at 484.228.1460 or email [email protected].
Jun
10
Sat
Down To Box: June 10, 2023 @ Jabz Boxing
Jun 10 @ 11:00 am – 11:30 am
Down To Box: June 10, 2023 @ Jabz Boxing

🥊Down To Box Weekly Classes🥊
Come & Try a Class for Free!

It’s happening!!!! Weekly classes are starting this upcoming weekend!! Who’s in?! Join us for fitness and fun for individuals of all abilities!
June 10, 2023 / Sessions go through the end of August!
Sat: 11:00-11:30am, Ages 6-12
Location: Jabz Boxing, 3488 Concord Rd, Aston, PA 19014
To sign up or for more information, contact us at 484.228.1460 or email [email protected].
Jun
14
Wed
Tampon Training Workshop – KARABOTS PEDIATRIC CARE @ KARABOTS PEDIATRIC CARE
Jun 14 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

KARABOTS PEDIATRIC CARE
4865 Market St.
Philadelphia PA. 19139
June 14 – 5pm or 6pm
June 28 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Jun
20
Tue
Tampon Training Workshop – CHOP SPECIALTY CARE @ CHOP SPECIALTY CARE
Jun 20 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

CHOP SPECIALTY CARE
3550 Market St. 3rd Floor
Philadelphia, PA. 19104
June 6 – 5pm or 6pm
June 20 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Jun
28
Wed
Tampon Training Workshop – KARABOTS PEDIATRIC CARE @ KARABOTS PEDIATRIC CARE
Jun 28 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

KARABOTS PEDIATRIC CARE
4865 Market St.
Philadelphia PA. 19139
June 14 – 5pm or 6pm
June 28 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Jul
2
Sun
Apply for Camp Pals 2023 Summer Camp @ Cabrini University
Jul 2 @ 9:00 am – Jul 8 @ 3:00 pm
Apply for Camp Pals 2023 Summer Camp @ Cabrini University

Join us in the city of brotherly love at PALS Philadelphia!

  • Leaders arrive Fri., June 30
  • Peers arrive Sat., July 1 (PM)
  • Partners arrive Sun., July 2
  • TIMES: TBA

Philadelphia – 1

PROGRAM SIZE:
Large (around 150 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.

AGES:
18+

APPLY HERE ➜


Philadelphia – 2

PROGRAM SIZE:
Medium (around 100 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.

AGES:
12 – 17 (15-17 for Peers without DS) & 18+

APPLY HERE ➜

Aug
14
Mon
The Monthly Webinar Series: August 14th
Aug 14 @ 7:00 pm – 8:00 pm
The Monthly Webinar Series: August 14th

The next Monthly Webinar sponsored by Down Syndrome Association of Delaware, Perinatal Prana, and Highmark is this evening, August 14th  from 7 – 8pm.

It is an opportunity to share your journey with others to form an understanding of various topic areas. No pressure to share, listening only is okay, too! We look forward to seeing a few of our DSIG families!

 

JOIN THE MEETING

Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY

Sep
19
Tue
JOIN OUR WEBINAR: with Dr. Jonothan Santoro, Pediatric Neurologist
Sep 19 @ 10:18 am – 11:18 am

Join NDSS and Dr. Jonathan Santoro for a 𝒇𝒓𝒆𝒆 webinar about Down Syndrome Regression Disorder (DSRD) on September 19th at 7:00 PM ET!

💻 Dr. Santoro is the country’s foremost expert in studying, diagnosing, and treating DSRD. This webinar will be recorded but join live for an opportunity to ask questions at the end! Register at https://us02web.zoom.us/webinar/register/WN_fAL6fhHTR5GQOf-FE0MO7A

REGISTER NOW