Tickets Are Limited So Don’t Delay!
DATE:ย April 23rd, 2023
TIME: Starts atย 12:05pm
GAME: Phillies vs. Rockies
PROMO CODE:ย DSAN
TICKETS: Order Here
Please join your fellow Down Syndrome Families from across the region at Down Syndrome Awareness Day with the Phillies!!!!
Please use our specific code โDSANโ for this year’s Down Syndrome Awareness Day with the Philadelphia Phillies (The National League Champions).ย The game will be against the Colorado Rockies at 12:05pm,on April 23rd. Itโs also the Phanaticโs birthday, so children under 14 get a free Phanatic t-shirt!
AND EVERYONE OF ALL AGES is welcome and encouraged to attend as we rally together for our Down Syndrome Community in the Delaware Valley!
If you have never attended, we cannot wait to meet you in person! Please know, this is an event you do not want to miss! Besides the fact that it will most likely be a high scoring game, it is an opportunity to meet your social media friends from the Delaware Valley in person at one general location, providing you get tickets with our code.
For those who have attended, I know you enjoyed yourself in the past and we cannot wait to see you again. Hopefully, the weather will be perfect for us!
As a token of thanks and to continue raising AWARENESS for DOWN SYNDROME and INCLUSION in our community we give out a limited amount of..
T-SHIRTSย to those WHO USE THE LINK OR CALL IN WITH OUR CODE โDSANโ TO PURCHASE TICKETS, on a first come basis at our table (exact location for t-shirt pick-up will be sent the day of the event).
By all means, use this meeting place to mingle! Use this time to meet up with OUR T21 FAMILIES who live in PA, NJ and DE! Additionally, this is a great time to take pictures for social media!
Depending on our ticket sales number, we could be given more perks. For example, one of our loved ones with T21 could throw out the first pitch and a pre-game video! Can you help to make this happen? If so, donโt delay purchasing your tickets!
How this works:
Rally your friends and family to celebrate Down Syndrome in the Delaware Valley while watching the Phillies at Citizens Bank Park.
Clink on the link below for seating charts and prices.
We have seats reserved in sections for different pricing and locations.
(The past few years the lower level seats have sold out first, so please plan accordingly.)
Tickets are subject to availability, there have been years we sold out, this is our 14th year!
Overall we average about 650 tickets each season; for those who support our DS community, please donโt delay placing your order!
Additionally, the more tickets we sell the more likely we are able to receive additional perks and funds which enable us to do other community outings throughout the year.
The link to purchase tickets with the prices and seating options is below.
The Board of the DSIG is excited to welcome our new families to the group with a private event for ALL families with children 12 years of age and younger. This is a great opportunity to hang out with other members in our group and to continue/form necessary friendship and support!
Join us for a night of fun for a private event at Betteโs Family Fun Center onย May 19th from 5:30-7:30pm. Pizza, snacks, and drinks will be provided!
Remember, your annual dues ($10) must be paid in order to attend the event. You can mail your dues to our PO Box (P.O. Box 5066, Springfield, PA 19064) before 5/12, or pay your dues at the event (please bring cash).
RSVP (with adult/kid headcount) by May 1st, 2023 to Christa via text (610)636-9872, or emailย [email protected].
Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!
Down to Box is conducting a coachesโ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.
Please emailย [email protected]ย to sign up. There is no cost to attend- this is a mini demo class that is part of our coachesโ training that day.
Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.
Philadelphia – 1
PROGRAM SIZE:
Large (around 150 people)
LOCATION:
Cabrini University
MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.
AGES:
18+
Philadelphia – 2
PROGRAM SIZE:
Medium (around 100 people)
LOCATION:
Cabrini University
MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.
AGES:
12 – 17 (15-17 for Peers without DS) & 18+
This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact.ย Families of a child with Down syndrome ofย any ageย are encouraged to attend our virtual monthly support calls on the following topics:
Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.
Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.
Please contact Susan Blessington, Outreach Coordinator, atย [email protected]ย or Ari Avila, Spanish Outreach Coordinator, atย [email protected]ย for more details.
Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?
This webinar on ๐๐๐ญ๐จ๐๐๐ซ ๐๐ญ๐ก ๐๐ญ ๐:๐๐ ๐๐ ๐๐ will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more!
Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.
๐๐ก๐ข๐ฌ ๐ฐ๐๐๐ข๐ง๐๐ซ ๐ฐ๐ข๐ฅ๐ฅ ๐ง๐จ๐ญ ๐๐ ๐ซ๐๐๐จ๐ซ๐๐๐, so be sure to register today!
DATE:ย November 17, 2023
TIME:ย Starts at 7 pm
WHERE:ย GET Cafรฉ / 246 Haverford Ave, Narberth, PA 19072
“There will be a parent get together November 17th at the GET Cafรฉ at 7pm! Generally, we bring snacks/drinks to share–whatever you like.
Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.
It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! ๐
GET Cafรฉ is located at 246 Haverford Avenue, Narberth, PA 19072.
Feel free rsvp on this post, Facebook message me, email or text.
[email protected]ย / 215-421-4375
Hope to see you there!!
The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!
Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton
WCU Best Buddies is hosting our first ever inclusive and sensory friendly concert! Often, individuals with unique abilities and sensory needs are not able to attend/enjoy a concert, so we are hosting one that anyone and everyone can enjoy! The lights and sound will be sensory friendly, there will be a sensory area with fidgets and activities, dancing and singing along is not only allowed but encouraged, and we have several performers with disabilities. There will also be a raffle with some awesome prizes like gift cards and suite style Sixers tickets!
This event is open to anyone and is not limited to just Best Buddies! Tickets will be $15 ($5 if you come in a Best Buddies t-shirt) cash or Venmo at the door. Go to Facebook to learn more about this event.