Upcoming Events

Mar
13
Sat
CHOP Trisomy 21 Clinic
Mar 13 all-day
CHOP Trisomy 21 Clinic
CHOP Symposium coming up on March13!!!!
Our member Helen Milligan, who is also a PT at CHOP, is looking forward to hearing Dr. Stein speak about behavior challenges and strategies! Helen will also be a presenter that day, so if you have a little one getting ready to walk, then her treadmill training talk is for you!!!! Lots of videos and tips to get you started! 💙💛
Mar
21
Sun
Happy World Down Syndrome Month!
Mar 21 all-day

3.21 IS WORLD DOWN SYNDROME DAY

To celebrate World Down Syndrome Day (3/21) the Delaware County Down Syndrome Interest Group is hosting a fundraiser with the chance to own a beautiful tumbler, pictured below. The 20 oz. black tumbler features a three arrow design which is symbolic in the Down syndrome community. It represents the three copies of the 21st chromosome that occur in Down syndrome. An arrow must first be pulled back in order to expel forward. While the initial diagnosis may cause a “pull-back” thanks to support, community and love your arrow will quickly be sprung forward to amazing heights! This quote is meaningful to the lucky few that get to experience life with a family member or loved one who has DS.

$15 per tumbler = black with silver decoration
Details about the fundraiser:

$15 per tumbler
Colors: Black tumbler with a choice of silver arrows (pictured above), Black tumbler with DS yellow and blue arrows

Two options for receiving your tumbler:
pick-up at a local Delco locations (time and places TBD), shipping (shipping cost will be added to final price).

This fundraiser will run throughout the month of March.

If you would like to order a tumbler, please complete the order form by clicking the link below.

ORDER FORM

WAYS TO CELEBRATE

ROCK YOUR SOCKS
Wear your most colorful or mismatched socks!

WEAR BLUE & YELLOW
These are the colors used to raise awareness for Down Syndrome.

Remember, we are more alike than different! People who have Down Syndrome can and will do all the same this you do, it just takes a little more time. BE KIND. BE INCLUSIVE.

Apr
23
Sun
Phillies Down Syndrome Awareness Night @ Citizens Bank Park
Apr 23 @ 12:05 pm
Phillies Down Syndrome Awareness Night @ Citizens Bank Park

Tickets Are Limited So Don’t Delay!

DATE: April 23rd, 2023
TIME: Starts at 12:05pm
GAME: Phillies vs. Rockies
PROMO CODE: DSAN
TICKETS: Order Here

Please join your fellow Down Syndrome Families from across the region at Down Syndrome Awareness Day with the Phillies!!!!

Please use our specific code “DSAN” for this year’s Down Syndrome Awareness Day with the Philadelphia Phillies (The National League Champions).  The game will be against the Colorado Rockies at 12:05pm,on April 23rd. It’s also the Phanatic’s birthday, so children under 14 get a free Phanatic t-shirt!

AND EVERYONE OF ALL AGES is welcome and encouraged to attend as we rally together for our Down Syndrome Community in the Delaware Valley!

If you have never attended, we cannot wait to meet you in person! Please know, this is an event you do not want to miss! Besides the fact that it will most likely be a high scoring game, it is an opportunity to meet your social media friends from the Delaware Valley in person at one general location, providing you get tickets with our code.

For those who have attended, I know you enjoyed yourself in the past and we cannot wait to see you again. Hopefully, the weather will be perfect for us!

As a token of thanks and to continue raising AWARENESS for DOWN SYNDROME and INCLUSION in our community we give out a limited amount of..

T-SHIRTS to those WHO USE THE LINK OR CALL IN WITH OUR CODE “DSAN” TO PURCHASE TICKETS, on a first come basis at our table (exact location for t-shirt pick-up will be sent the day of the event).

By all means, use this meeting place to mingle! Use this time to meet up with OUR T21 FAMILIES who live in PA, NJ and DE! Additionally, this is a great time to take pictures for social media!

Depending on our ticket sales number, we could be given more perks. For example, one of our loved ones with T21 could throw out the first pitch and a pre-game video! Can you help to make this happen? If so, don’t delay purchasing your tickets!

How this works:
Rally your friends and family to celebrate Down Syndrome in the Delaware Valley while watching the Phillies at Citizens Bank Park.

Clink on the link below for seating charts and prices.

We have seats reserved in sections for different pricing and locations.
(The past few years the lower level seats have sold out first, so please plan accordingly.)

Tickets are subject to availability, there have been years we sold out, this is our 14th year!

Overall we average about 650 tickets each season; for those who support our DS community, please don’t delay placing your order!

Additionally, the more tickets we sell the more likely we are able to receive additional perks and funds which enable us to do other community outings throughout the year.

The link to purchase tickets with the prices and seating options is below.

BUY TICKETS

View Seating Options

May
10
Wed
BINGO – Planning Meeting / Wed., May 10th at 7:00pm @ Zoom
May 10 @ 7:00 pm
BINGO - Planning Meeting / Wed., May 10th at 7:00pm @ Zoom

Join us for our Bingo Brainstorming Call on Wednesday, May 10th at 7:00 pm.  We will be brainstorming ideas for the next DSIG Bingo event (10/21/23), forming a bingo planning committee, and sharing feedback from past bingo events. If you are interested in helping brainstorm, soliciting donations, or joining the committee, join us from the comforts of your home.  We appreciate ANY help you are willing to provide.

Zoom Information:
Join Zoom Meeting
https://us04web.zoom.us/j/95378571493?pwd=S2NIRFdtTHc1NWJsNHNGRFloZWlNQT09
Meeting ID: 953 7857 1493
Passcode: DSIG

 

May
20
Sat
Down To Box Is Coming To DELCO!! @ Jabz Boxing
May 20 @ 1:00 pm

🥊We Are So Lucky!!🥊
Down To Box Is Coming To DELCO!!

 

Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!

Down to Box is conducting a coaches’ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.

Please email [email protected] to sign up. There is no cost to attend- this is a mini demo class that is part of our coaches’ training that day.

Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.

May
29
Mon
Happy Memorial Day!
May 29 all-day
Happy Memorial Day!

Remembering and honoring the brave men and women who made the ultimate sacrifice for our freedom.

🌺 Have a Happy & Safe Memorial Day🙏🏼
Jun
11
Sun
ALL ABILITIES KARAOKE🎤 @ THE MEDIA VFW POST 3460
Jun 11 @ 1:00 pm – 3:00 pm
ALL ABILITIES KARAOKE🎤 @ THE MEDIA VFW POST 3460

For The Special Superstar In Your Life

BROUGHT TO YOU BY THE MEDIA VFW POST 3460
Hosted by DJ Lisa Parks / Parks Entertainment

Adults With Special Needs: 18yrs and Up
$10.00 per Chaperone
(at least 1 caregiver per Superstar)

Date: Sunday, June 11th, 2023 / 1-3 pm
Location: 11 Hilltop Rd, Media, PA 19063

RSVP REQUIRED

Please call 484-259-7898 or email [email protected].
Jul
4
Tue
Have a Happy and Safe 4th of July!
Jul 4 all-day
Aug
3
Thu
RSVP for Our Summer Picnic!!! @ Paxon Hollow Country Club
Aug 3 @ 6:00 pm – 9:00 pm
RSVP for Our Summer Picnic!!! @ Paxon Hollow Country Club
The annual summer picnic will be held on Thursday, August 3rd from 6-9PM at Paxon Hollow Country Club.

Please RSVP to Megan Califano at [email protected] by July 21st. As always, please respond responsibly.

EMAIL Megan
Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY