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Upcoming Events

May
5
Sun
Down Syndrome Awareness Night at The Phillies @ Citizens Bank Park
May 5 @ 2:05 pm – 5:15 pm

Are You Ready for Some Baseball?

Join your friends from DSIG & the T21 Group for the 10th Annual Down Syndrome Awareness Day at the Phillies!

Date: Sunday, May 5th

Game time: 2:05pm

Phillies v. Washington Nationals (Bryce’s old team)

Seats: Section 206 and 207 (Handicap Accessible Seating is available).

Promotion:  Phillies celebrate Mother’s Day.  Every young lady 15 years and older will receive a Ladies Fleece Pullover

There will be 2 ticket options this year as The T21 club is hosting a pre-game tent party from 12:00-1:30pm.

Option 1:  Purchase a game ticket only for $38.00. (Children 3-under are free but do not have their own seat.  Lap time!)

Option 2:  Ages 11-up ticket for Pre-game Tent party and seat in Sec 206-207 are $78.00

                   Ages 6-10 ticket for Pre-game Tent party and seat in Sec 206-207 are $58.00

                   Ages 3-5 ticket for Pre-game Tent party and seat in Sec 206-207 are $38.00 (must enter with parent who purchased a $78.00 ticket)

                   Ages 3-under no charge but must enter with a parent who purchased a $78.00 ticket

The Pre-game Tent Party will include a ballpark food buffet, soft drinks and water, a PHILLIES CAP, and a few special guests to visit with.  There will be bartender service for a cash bar.

Tee-shirts (if sponsorship is obtained) may be given out at the Pre-game tent party only.  Again that is not for certain.

I must have orders and payment prior to April 1st (no fooling!)  Ticket order has to be placed by April 5th.

If you would like to send a check please make payable to me Jack Malone  and if you would like to mail it to me:

4913 Jackson Drive Brookhaven, Pa 19015.

Please feel free to call me at 484-682-5550 if you have any questions.

Thank you,

Jack Malone

Jun
2
Sun
No Regret 5K & 1 MILE WALK @ Ridley Creek State Park/ Pavilion #11
Jun 2 @ 7:00 am – 12:00 pm
No Regret 5K & 1 MILE WALK @ Ridley Creek State Park/ Pavilion #11

Sunday June 2, 2019

Ridley Creek State Park / Pavilion #11

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InkAway Laser Tattoo Removal is having a “No Regret 5K Run and 1 Mile Walk” at Ridley Creek State Park on Sunday, June 2, 2019. Learn more about the event in the description below and let us know if you are available to volunteer for the event.

PLACE
1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

DESCRIPTION
Help us support a great event that benefits the Down Syndrome Interest Group of Delaware County.

Location:
Ridley Creek State Park Area 11

Awards:
Top 1-3 Overall
$150.00 to 1st place finisher
$75.00 to 2nd place finisher
$50.00 to 3rd place finisher

Amenities:
Please join us on Sunday June 2, 2019 at Ridley Creek State Park (picnic Area 11) for the 1st Annual Inkaway No Regret 5K run and 1 mile walk to benefit the Down Syndrome Interest Group of Delaware County. The 5K race starts at 8:00 AM and the 1 mile walk begins at 8:05AM. This course is USATF certified.

Race day registration begins at 7:00 AM.
Water stations will be available for the 5K run at mile 1.5 and at the finish line; post-race refreshments and snacks will also be provided; Finisher medal for all participants; T-shirt to all participants while supplies last

Packet Pickup will take place at Inkaway Laser Tattoo Removal- 220 Wilmington West Chester Pike (Rt. 202), Chadds Ford, PA 19317 on Friday, May 31st from 5-7PM and Saturday June 1st from 4-7PM.

The Delaware County Down Syndrome Interest Group (DSIG) was formed in 1990 by a group of families touched by Down Syndrome in Delaware County, who are dedicated to living successfully. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome.

Race Results:
Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Questions:
Contact: Stephanie Sapp, [email protected], (484) 840-8663

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Sep
26
Thu
DSIG Welcome Back Meeting! @ Widener University, University Center 2nd Floor, Room F
Sep 26 @ 7:00 pm
DSIG Welcome Back Meeting! @ Widener University, University Center 2nd Floor, Room F

We hope everyone had a great summer and are getting back into the swing of things now that Fall has officially begun! It’s time to begin a new year with DSIG, so please join us for our first meeting of the season at our new meeting location, Widener University!

When: Thursday, 9/26/19
Time: 7:00pm
Where: Widener University, University Center
2nd Floor, Room F

For a map of the campus, please visit their website at Widener.edu

We will not have a speaker for this meeting, as it will just be a time to catch up with old friends & possibly meet some new friends! We hope to see you there!

We hope to see you there!

Oct
22
Tue
Linvilla Wagon Ride: Tuesday, Oct 22nd 🍁🎃👻 @ Linvilla Orchards
Oct 22 @ 5:15 pm
Linvilla Wagon Ride: Tuesday, Oct 22nd 🍁🎃👻 @ Linvilla Orchards

The next event is planned and we hope you can attend!!!
We will be renting a 50 person wagon at Linvilla on Tuesday, Oct 22nd! The wagon leaves PROMPTLY at 5:45. They ask that we show up 30 mins prior to the hayride to ensure everyone is on in time! I know my husband missed it the last time we did this event by literally a minute!

This event will be open to our birth-5 and 6-12 group.

The event is free for DSIG paid members 😊


We can only take the first 50 RSVPs. Please RSVP respectfully as the DSIG is paying $8 per person to attend, and other people would gladly fill the spots! 🍁🎃👻

Please email Kelsey at [email protected]. Kelsey will be in contact with the first 50! 😀

Nov
9
Sat
Tools & Totes Bingo 2019 @ Brookhaven Municipal Center
Nov 9 @ 5:00 pm

Saturday, November 9, 2019 • Brookhaven Municipal Center

2 Cambridge Rd. Brookhaven, PA 19015
Doors open at 5:00pm/Games begin at 6:00pm

$40 at the door

  • 10 Bingo Games
  • Prizes range from designer bags to sporting event packages
  • Raffle baskets, 50/50, and a special Bingo game will be available
  • Bring your own snacks/beverages; some will be available for purchase
  • Tables can be reserved for parties of 8 or more.
  • Must be 21 to attend
All proceeds benefit the Delaware County Down Syndrome Interest Group. This organization sponsors family training, education activities, social gathers, and health initiatives for those with Down syndrome and their families.

“Together we will make a BIG difference.”

Dec
4
Wed
2019 DSIG Holiday Party @ Paxon Hollow Country Club
Dec 4 @ 6:00 pm – 9:00 pm
2019 DSIG Holiday Party @ Paxon Hollow Country Club

The annual DSIG Holiday Party will be held on Wednesday, December 4, 2019, from 6 to 9 PM at Paxon Hollow Country Club. Come join us for a night of dinner, dancing & great friendship! RSVP is required for this event.

Please email Megan at [email protected] with the number of adults and number of children (12 and under). There is a strict RSVP date of Friday, November 29, 2019. No late responses will be honored.

As in years past, we will be collecting for a local food pantry, so please bring a $10 donation or $10 in food items, and consider this your admission to the party.

Last but not least, annual dues will be collected for 2020 at this event. Our dues will remain the same as in previous years at $10 per household.

We hope to see you there!

Nov
1
Sun
Run for Homies with Extra Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 1 @ 9:30 am – 1:30 pm

 

Sunday November 1 at 9:30 AM

Ridley Creek State Park / Pavilion #11

Use Discount code homies20off 
for 20% off the registration fee.

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Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County. This course is USATF certified. Walkers are also welcomed to join!

PLACE
1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

DESCRIPTION
Help us support a great event that benefits the Down Syndrome Interest Group of Delaware County.

Location:
Ridley Creek State Park Area 11

Date and time:
Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Course Support:
Due to Covid-19 there will not be any water stops

Race Details:
Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Awards:
Top 1-3 Male and Female
$150.00 to 1st place finisher
$75.00 to 2nd place finisher
$50.00 to 3rd place finisher

T-Shirts and a running buff will be provided to all participants while supplies last.

Amenities:
Please join us on Sunday June 2, 2019 at Ridley Creek State Park (picnic Area 11) for the 1st Annual Inkaway No Regret 5K run and 1 mile walk to benefit the Down Syndrome Interest Group of Delaware County. The 5K race starts at 8:00 AM and the 1 mile walk begins at 8:05AM. This course is USATF certified.

Pre-race packet pickup:
Sunday, November 1, 2020 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking:
Free Parking at Pavillion 11A & B

Race Results:
Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at brynmawrracing.com

Questions:
Contact: Stephanie Sapp, [email protected](484) 840-8663

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.

  1. The race will be capped at 200 runners to limit crowds.
  2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
  3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
  4. There will be rolling start times.
  5. Awards will be based on chip time, including overall winners.
  6. All volunteers tasked with serving the runners will be wearing masks.
  7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

 

Thank you to our sponsors

 

GOLD

SILVER

BRONZE

VALUED SPONSOR

Sponsorships Donations, and Volunteers:
There are a number of ways to get involved in the 5K Run for Homies with Extra Chromies. Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits. Volunteers, please register on this website. Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance. To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected].

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit https://delcodsig.org/

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Feb
13
Sat
Virtual Valentine’s Day
Feb 13 @ 7:00 pm
Host: Kratowicz Family / (215) 421-4375
When: Saturday, Februart 13 from 7pmto 8pm ET
Where: The Comfort of you home!We are celebrating Valentine’s Day with our DCDSIG teens and adults social distancing style with a virtual Valentine’s day dance party!

Wear your most comfy pajamas, favorite Valentine’s sweater, or dress in your Valentine’s day best; whatever makes you to feel loved! Get out your disco balls, balloons, glow bands and join the party! (My daugther Jane personally prefers to jump/dance on her mini trampoline to her favorite tunes!)

If you’d like to hear any particular songs at the party let me know with a comment when you respond to this evite. Please RSVP to this evite if you can make it! ❤️

CLICK HERE TO RSVP
Feb
24
Wed
Speech Intelligibility presentation
Feb 24 @ 7:00 pm
Speech Intelligibility presentation

Speech Intelligibility presentation: Why is speech difficult to understand in some children with Down syndrome

Wednesday, February 24, 2021 at 7 PM EST
Presented by Libby Kumin Ph.D., CCC-SLP, Professor Emeritus Loyola University Maryland, part of a three-part series sponsored by CDSPG.

Presentation is targeted for parents of children from age 4 to adulthood.
How can we help children with Down syndrome develop speech that is easier to understand? There are many factors that affect speech intelligibility in children and adults with Down syndrome but the occurrence and combination of factors are different for each person. Dr. Kumin will present a framework that can be used for identifying, analyzing, and treating the factors that affect speech intelligibility for your child, e.g. rate, articulation, oral motor skills and childhood apraxia of speech. Attendees will learn how to write IEP goals that target factors affecting speech intelligibility in your child and how to develop a home-school communication plan and to use home activities to practice speech skills. Handouts, forms and checklists will be included.

Mar
13
Sat
CHOP Trisomy 21 Clinic
Mar 13 all-day
CHOP Trisomy 21 Clinic
CHOP Symposium coming up on March13!!!!
Our member Helen Milligan, who is also a PT at CHOP, is looking forward to hearing Dr. Stein speak about behavior challenges and strategies! Helen will also be a presenter that day, so if you have a little one getting ready to walk, then her treadmill training talk is for you!!!! Lots of videos and tips to get you started! 💙💛