Upcoming Events

Feb
28
Fri
DSIG February RMM @ Hancock United Methodist Church
Feb 28 @ 12:30 am – 1:30 am

DSIG February RMM – Using the Treadmill to teach Children with Trisomy 21 how to Walk

Date: Thursday, 2/27/14

Time: Doors open at 7pm with presentation beginning at 7:30pm

Location: Hancock United Methodist Church, Springfield, PA

Child Care will be provided
Current research by Ulrich and colleagues has shown that treadmill training can help babies with Down syndrome learn to walk sooner and more efficiently. A subsequent study by Wu, Ulrich and colleagues demonstrated that treadmill training can also improve a child’s gait by manipulating the intensity of training. This workshop will discuss the recent treadmill training studies and how therapists and families can implement the research findings in their own homes.
The workshop presenter, Helen Milligan, MPT, is Aidan Milligan’s mother and a member of the Delco DSIG. She is a Physical Therapist at The Children’s Hospital of Philadelphia and a therapist in Early Intervention. She has been utilizing treadmill training in her therapy practice and will share some practical advice that has been helpful in motivating children and families with this approach. Videos will be a part of the presentation.

Hope to see you on the 27th!

Even if you do not have a little person who can benefit from this information, we’d love to see you at the meeting to share your journey with those younger parents to show them that… it’s going to be OK!

Mar
22
Sat
CHOP Trisomy 21 Educational Series @ Ruth M. and Tristram Colket, Jr. Translational Research Building, CHOP Main Campus
Mar 22 @ 12:30 pm – 4:15 pm

Educational Series

 

The Trisomy 21 Program at The Children’s Hospital of Philadelphia, in cooperation with Hinkle, Fingles & Prior, attorneys at law, is hosting a two-part educational series on March 22 and April 26, 2014. The events will provide important information to families of children and adults with Down syndrome. The first session will focus on concerns that may arise during your child’s school-age years. The second session will educate you about resources and services available for you and your adult child after age 21.

 

We encourage you to attend both sessions. Space is limited, so please register early.

 

Please note: Childcare will not be provided.

Event 1: Special Education and Secondary Education

Saturday, March 22, 2014
8:30 a.m. to 12:15 p.m.
Ruth M. and Tristram Colket, Jr. Translational Research Building, CHOP Main Campus

 

Event agenda:

9 a.m.-12:15 p.m. — Attorney Consultations (Optional)

9-10:30 a.m. Breakout Session 1 (Choose one)

  • Achieving Effective Inclusive Education (Room 1)
  • Secondary Education Part I (Room 2)

10:30-10:45 a.m. — Break (Room 1) 

10:45 a.m.-12:15 p.m. — Breakout Session 2 (Choose one)

  • Obtaining and Securing Related Services (Room 2)
  • Secondary Education Part II (Room 3) 

12:15 p.m. — Adjourn

 

 

Mar
27
Thu
DSIG March RMM @ Hancock United Methodist Church
Mar 27 @ 11:00 pm – Mar 28 @ 1:00 am

DSIG March RMM – Post Secondary Education

Come hear DSIG families and young adults speak about their experiences with post secondary education.

Date: Thursday, 3/27/14
Time: Doors open at 7pm with presentation beginning at 7:30pm
Location: Hancock United Methodist Church, Springfield, PA
Child Care will be provided.

Hope to see you on the 27th!

Apr
5
Sat
DSIG 24th Annual “Walk for Our Kids” @ Springfield Mall
Apr 5 @ 12:00 pm – 2:00 pm

24th Annual “Walk for Our Kids” – A Walk for Down Syndrome

Walk for Our KidsPlease join us for another morning of FUN and friendship. We will be in need of Silent Auction items and baskets for our Basket Raffle. Also, if you have a suggestion for a new sponsor for this year, please contact Patty at, [email protected].

We will also need volunteers to help the morning of the walk, so please consider helping out. This is our main fundraiser for the year and it allows us to continue to sponsor events for our families throughout the year.

Join us for food, fun, and entertainment. This is a great chance for individuals, families, and the community to get together to help make a tremendous difference in the lives of those with Down Syndrome.

 

A Special Thanks to Our Sponsors:

A “Friend of DSIG”

S.J. Thomas Co., Inc.

James M. Tyler, Attorney At Law

Larry Robinson & Sons Builders Contractors Inc.

MSI Tool Repair & Supply

Steamfitters’ Local Union 420 United Association

Haggerty’s Landscape & Design, LLC

Genesis Engineers, Inc.

Rock for CHOP

Neumann University

In Loving Memory of Joseph W. Farrell

Joseph A. Ward Funeral Home, Inc.

John Vena, Inc.

BeneServ Corporate Benefit Services, Inc.

Jennifer Kearney Photography

De LaSalle String Band Orchestra

Makin’ Music

State Road Builders Supply Co., Inc.

Nuss Printing, Inc.

Springfield Mall

Starbucks Coffee

Wawa

Pepsi Cola

Center City Pretzel Co., Inc.

Faux Tale

The Bannister Family

The Bruno Family

Christa Califano, Christa’s Custom Cakes

Marie Califano

Julia Cavicchio

The Farthing Family

The Haggerty Family

The Hamilton Family

Havertown Post Office Mail Carriers

The Hegman Family

The Irvello Family

Kelly’s Kandy and Nuts, Collingdale, PA

Bridget LaSalle and Jeff Bagley

Irene and Tony LaSalle

Michelle and Anthony LaSalle, Jr.

Cathy Ludwick

C.J. Luther

Nick Luther

Chloe, Charlotte and Shane MacMullett

Chloe’s Cousins

Kevin & Cosette MacMullett

Kim MacMullett

Maggiano’s Restaurant, King of Prussia, PA

The Maguire Families

Anna Maturo

The Oakes Family

Gary Quillen, MooSa Black Belt Academy, Aston, PA

Nick Sabatino, INKWELL Tattoo, Upper Darby

The Short/Lees Family

Katie S. Taylor, getyourgifthere.com

Zanna Tilson

The Tyler Family

Marc Voci Salon, Folsom, PA

 

A special “Thank You” to all of our DSIG families and friends who helped to make the 2013 “Walk for Our Kids” such a huge success! 

Apr
24
Thu
April RMM @ Hancock United Methodist Church
Apr 24 @ 11:00 pm

PT Students from Arcadia University will be presenting a session on Physical Fitness… more details to follow.

Apr
26
Sat
CHOP Trisomy 21 Educational Series
Apr 26 @ 12:30 pm – 4:15 pm

Educational Series

The Trisomy 21 Program at The Children’s Hospital of Philadelphia, in cooperation with Hinkle, Fingles & Prior, attorneys at law, is hosting a two-part educational series on March 22 and April 26, 2014. The events will provide important information to families of children and adults with Down syndrome. The first session will focus on concerns that may arise during your child’s school-age years. The second session will educate you about resources and services available for you and your adult child after age 21.

 

We encourage you to attend both sessions. Space is limited, so please register early.

 

Please note: Childcare will not be provided.

 

Event 2: Adulthood

Saturday, April 26, 2014
8:30 a.m. to 12:15 p.m.
3535 Market St., Philadelphia — 16th Floor

 

Event agenda:

8:30 a.m. — Welcome and Registration

9 a.m. – 12:15 p.m. — Attorney Consultations  (Optional)

9 – 10:30 a.m. Breakout Session 1 (Choose one)

  • Accessing Appropriate Adult Services in New Jersey (Room 1) 
  • Accessing Appropriate Adult Services in Pennsylvania (Room 2)

10:30 – 10:45 a.m. — Break (Room 1)

10:45 a.m. – 12:15 p.m. — Breakout Session 2 (Choose one)

  • Creative Options for Housing, Funding and Support Services in New Jersey (Room 1) 
  • Creative Options for Housing, Funding and Support Services in Pennsylvania (Room 2)

12:15 p.m. — Adjourn

 

Register Online: www.chop.edu

 

May
22
Thu
May RMM @ Hancock United Methodist Church
May 22 @ 11:00 pm – May 23 @ 12:00 am

Representatives from Delco Special Olympics will be presenting on their program and the Young Athletes Program.

Sep
25
Thu
September RMM @ Hancock Church
Sep 25 @ 7:00 pm – 9:00 pm

Our September RMM will take place this upcoming Thursday, 9/25/14, at Hancock Church in Springfield (located on Route 320, just off the 420 intersection).  Doors will open at 7pm and the meeting will begin at 7:30pm.  As in past Septembers, this meeting will once again be an open forum meeting.  It’s a time to hear about the exciting events that we have planned this year for DSIG and a time to re-connect with families that you may not have gotten a chance to see over the summer.  If you have any questions or concerns about DSIG or have an idea for a speaker or topic for the upcoming year, we would love to hear your thoughts.

Oct
23
Thu
October RMM @ Hancock Church
Oct 23 @ 7:00 pm – 9:00 pm

Our October RMM will take place this upcoming Thursday, 10/23/14, at Hancock Church in Springfield (located on Route 320, just off the 420 intersection).  Doors will open at 7pm and the meeting will begin at 7:30pm.  The guest speaker for this meeting will be Symme Trachtenberg, MSW, Director of Community Education for the CHOP Trisomy 21 Program.  Symme will be speaking on the topic of “Caregiver Support”.  Child care will be available.

Nov
1
Sat
Creative Options Forum @ Quality Inn & Suites Lantern Lodge
Nov 1 @ 9:30 am – 3:00 pm

Creative Options Forum: Choices Beyond Group Homes

  • Can my family member and a friend share costs to rent a house?
  • How can we arrange the supports they need and want?
  • What’s a microboard?
  • Ever hear about self-directed support corporations?
  • Can I buy a home when my only income is Supplemental Security Income (SSI)?
  • How can we purchase a home for our family member?
  • How can we use technology so our family member can live more independently?

Creative Options Forum will attempt to answer your questions and spark new ideas for possibilities!

Join us to learn from experts about non-traditional ways of organizing housing and supports. Consider creative ways available to buy a home.

Explore the role of today’s new technology in helping people live safely and independently. Talk with self-advocates who are living these choices!

DATE AND LOCATION:

Saturday, November 1, 2014
Quality Inn & Suites
Lantern Lodge
411 N. College Street
Myerstown, PA 17067

REGISTRATION DEADLINE: October 30, 2014

See the link below for the printable conference brochure:

https://gallery.mailchimp.com/b248b2c4b5fcb2f5924466caf/files/creativeOptionsFlyer_20141101.pdf
Call toll-free 1-866-865-6170 for more information about The Pennsylvania Training Partnership for People with Disabilities and Families.

Check our website for a complete calendar of trainings: www.TheTrainingPartnership.org

The Partnership is a project of the Institute on Disabilities at Temple University, College of Education.
Funded by the Office of Developmental Programs, Department of Public Welfare.