Upcoming Events

Aug
14
Mon
The Monthly Webinar Series: August 14th
Aug 14 @ 7:00 pm – 8:00 pm
The Monthly Webinar Series: August 14th

The next Monthly Webinar sponsored by Down Syndrome Association of Delaware, Perinatal Prana, and Highmark is this evening, August 14th  from 7 – 8pm.

It is an opportunity to share your journey with others to form an understanding of various topic areas. No pressure to share, listening only is okay, too! We look forward to seeing a few of our DSIG families!

 

JOIN THE MEETING

Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY

Sep
19
Tue
JOIN OUR WEBINAR: with Dr. Jonothan Santoro, Pediatric Neurologist
Sep 19 @ 10:18 am – 11:18 am

Join NDSS and Dr. Jonathan Santoro for a 𝒇𝒓𝒆𝒆 webinar about Down Syndrome Regression Disorder (DSRD) on September 19th at 7:00 PM ET!

💻 Dr. Santoro is the country’s foremost expert in studying, diagnosing, and treating DSRD. This webinar will be recorded but join live for an opportunity to ask questions at the end! Register at https://us02web.zoom.us/webinar/register/WN_fAL6fhHTR5GQOf-FE0MO7A

REGISTER NOW 

Sep
28
Thu
Parent Training: Strategies to Support Executive Functioning Skills
Sep 28 @ 6:00 pm – 8:00 pm

Join us Thursday, September 28, 2023 to talk about Strategies to Support Executive Functioning Skills! 6:00pm to 8:00pm via Zoom! Sign up using the registration link below by September 26, 2023.

SIGN UP TODAY  ➜

Oct
1
Sun
Happy Down Syndrome Awareness Month! 💙💛
Oct 1 all-day
🌞Sunny Day Camp 2023🌞 @ Brandywine Youth Club
Oct 1 @ 9:30 am – 3:30 pm
🌞Sunny Day Camp 2023🌞 @ Brandywine Youth Club

The Pennsylvania State Police invites children and adults, with special needs, or disabilities and Special Olympics participants, with their families to join us for the first free law enforcement based “Sunny Day Camp” in Concord Township, Delaware County. This event will be held at the Brandywine Youth Club and is open to all residents. This will be a fun filled learning day with law enforcement for all ages. This event will be held rain or shine, with programs held indoors in case of inclement weather.

WHEN – Sunday, October 1, 2023 – Rain or Shine
WHERE – Brandywine Youth Club 47 Thornton Road, Glen Mills PA 19342

  • All individuals must register online at www.sunnydaycamp.org Troop K-Media
  • Sunny Day Camp is FREE with lunch and snacks included. Any questions can be referred to Trooper Jessica Tobin (610-558-7074) [email protected]
  • Troop K – Media Barracks (1342 W. Baltimore Pike, Media PA 19063)
  • Applicants must be a Special Olympic Participant, or a Adult/Child
  • with special needs, or disability. There is no age limit to attend
  • Sunny Day Camp participants must be accompanied, by a family member, or a guardian

REGISTER ONLINE

Understanding SSI and SSDI Work Incentives and Benefits WEBNINAR
Oct 1 @ 6:31 pm – 7:31 pm

🚨 Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?

This webinar on 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟒𝐭𝐡 𝐚𝐭 𝟏:𝟎𝟎 𝐏𝐌 𝐄𝐓 will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! 💥

Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.

𝐓𝐡𝐢𝐬 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 𝐰𝐢𝐥𝐥 𝐧𝐨𝐭 𝐛𝐞 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝, so be sure to register today!

REGISTER TODAY

Nov
17
Fri
Invitation from member Sara Jane Wolff to a Parent Get Together.
Nov 17 @ 7:00 pm
Invitation from member Sara Jane Wolff to a Parent Get Together.

DATE: November 17, 2023
TIME: Starts at 7 pm
WHERE: GET Café / 246 Haverford Ave, Narberth, PA 19072

“There will be a parent get together November 17th at the GET Café at 7pm! Generally, we bring snacks/drinks to share–whatever you like.

Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.

It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! 😉

GET Café is located at 246 Haverford Avenue, Narberth, PA 19072.

Feel free rsvp on this post, Facebook message me, email or text.

[email protected] / 215-421-4375

Hope to see you there!!

EMAIL TO RSVP

Nov
30
Thu
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg
Nov 30 @ 9:30 am – 4:30 pm
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg

The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!

Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton

REGISTER TODAY

Jan
14
Sun
Virtual Family Leadership Institute Level 2: Serving on Groups Series
Jan 14 @ 6:30 pm – Jan 17 @ 8:00 pm
Did you make a New Years resolution to get more involved in your community in 2024? If so, this is a great series to help you get started!

Virtual Family Leadership Institute Level 2: Serving on Groups Series
6:30 – 8:00 PM on Wednesday evenings January 17th through February 21st, 2024
For Family Leaders who have already completed a PEAL Family Leadership Institute, or for those family members who have already taken a first step towards Advocacy Leadership, this Serving on Groups workshop Series is an important next step!
This series is designed to support and increase participation of families on decision-making groups.
Do you want to be more involved in a decision-making group but not sure where to begin?
Are you tired of feeling like the token parent representative instead of an active member of a decision-making group?
So many times, we are on committees or in meetings but don’t know what the process is or how to fully participate. This workshop will introduce you to a resource to help you navigate decision-making groups.
Learn more below: