Upcoming Events

May
19
Fri
Family Fun Night At Betteโ€™s Family Fun Center On May 19th @ Betteโ€™s Family Fun Center
May 19 @ 5:30 pm โ€“ 7:30 pm
Family Fun Night At Betteโ€™s Family Fun Center On May 19th @ Betteโ€™s Family Fun Center

The Board of the DSIG is excited to welcome our new families to the group with a private event for ALL families with children 12 years of age and younger. This is a great opportunity to hang out with other members in our group and to continue/form necessary friendship and support!

Join us for a night of fun for a private event at Betteโ€™s Family Fun Center onย May 19th from 5:30-7:30pm. Pizza, snacks, and drinks will be provided!

Remember, your annual dues ($10) must be paid in order to attend the event. You can mail your dues to our PO Box (P.O. Box 5066, Springfield, PA 19064) before 5/12, or pay your dues at the event (please bring cash).

RSVP (with adult/kid headcount) by May 1st, 2023 to Christa via text (610)636-9872, or emailย [email protected].

May
20
Sat
Down To Box Is Coming To DELCO!! @ Jabz Boxing
May 20 @ 1:00 pm

๐ŸฅŠWe Are So Lucky!!๐ŸฅŠ
Down To Box Is Coming To DELCO!!

 

Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!

Down to Box is conducting a coachesโ€™ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.

Please emailย [email protected]ย to sign up. There is no cost to attend- this is a mini demo class that is part of our coachesโ€™ training that day.

Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.

Jul
2
Sun
Apply for Camp Pals 2023 Summer Camp @ Cabrini University
Jul 2 @ 9:00 am โ€“ Jul 8 @ 3:00 pm
Apply for Camp Pals 2023 Summer Camp @ Cabrini University

Join us in the city of brotherly love at PALS Philadelphia!

  • Leaders arrive Fri., June 30
  • Peers arrive Sat., July 1 (PM)
  • Partners arrive Sun., July 2
  • TIMES: TBA

Philadelphia – 1

PROGRAM SIZE:
Large (around 150 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.

AGES:
18+

APPLY HERE โžœ


Philadelphia – 2

PROGRAM SIZE:
Medium (around 100 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.

AGES:
12 – 17 (15-17 for Peers without DS) & 18+

APPLY HERE โžœ

Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm โ€“ 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact.ย Families of a child with Down syndrome ofย any ageย are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, atย [email protected]ย or Ari Avila, Spanish Outreach Coordinator, atย [email protected]ย for more details.

REGISTER TODAY

Oct
1
Sun
Happy Down Syndrome Awareness Month! ๐Ÿ’™๐Ÿ’›
Oct 1 all-day
Understanding SSI and SSDI Work Incentives and Benefits WEBNINAR
Oct 1 @ 6:31 pm โ€“ 7:31 pm

๐Ÿšจ Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?

This webinar on ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ ๐Ÿ’๐ญ๐ก ๐š๐ญ ๐Ÿ:๐ŸŽ๐ŸŽ ๐๐Œ ๐„๐“ will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! ๐Ÿ’ฅ

Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.

๐“๐ก๐ข๐ฌ ๐ฐ๐ž๐›๐ข๐ง๐š๐ซ ๐ฐ๐ข๐ฅ๐ฅ ๐ง๐จ๐ญ ๐›๐ž ๐ซ๐ž๐œ๐จ๐ซ๐๐ž๐, so be sure to register today!

REGISTER TODAY

Nov
17
Fri
Invitation from member Sara Jane Wolff to a Parent Get Together.
Nov 17 @ 7:00 pm
Invitation from member Sara Jane Wolff to a Parent Get Together.

DATE:ย November 17, 2023
TIME:ย Starts at 7 pm
WHERE:ย GET Cafรฉ / 246 Haverford Ave, Narberth, PA 19072

“There will be a parent get together November 17th at the GET Cafรฉ at 7pm! Generally, we bring snacks/drinks to share–whatever you like.

Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.

It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! ๐Ÿ˜‰

GET Cafรฉ is located at 246 Haverford Avenue, Narberth, PA 19072.

Feel free rsvp on this post, Facebook message me, email or text.

[email protected]ย / 215-421-4375

Hope to see you there!!

EMAIL TO RSVP

Nov
30
Thu
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg
Nov 30 @ 9:30 am โ€“ 4:30 pm
#NextGenInclusion Toward Increasing Inclusion in Schools @ Hilton Harrisburg

The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!

Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton

REGISTER TODAY

Feb
24
Sat
Best Buddies Inclusive Concert @ Emilie K. Asplundh Concert Hall
Feb 24 @ 2:00 pm โ€“ 3:30 pm
Best Buddies Inclusive Concert @ Emilie K. Asplundh Concert Hall

WCU Best Buddies is hosting our first ever inclusive and sensory friendly concert! Often, individuals with unique abilities and sensory needs are not able to attend/enjoy a concert, so we are hosting one that anyone and everyone can enjoy! The lights and sound will be sensory friendly, there will be a sensory area with fidgets and activities, dancing and singing along is not only allowed but encouraged, and we have several performers with disabilities. There will also be a raffle with some awesome prizes like gift cards and suite style Sixers tickets!

This event is open to anyone and is not limited to just Best Buddies! Tickets will be $15 ($5 if you come in a Best Buddies t-shirt) cash or Venmo at the door. Go to Facebook to learn more about this event.

Mar
21
Thu
World Down Syndrome Day Live Event with Sofia Sanchez
Mar 21 @ 2:00 pm
World Down Syndrome Day Live Event with Sofia Sanchez
DATE & TIME: March 21st at 2pm ET

Watchย Sofia Sanchez’sย Live Event onย Scholastic StoryVoiceย on World Down Syndrome Day from anywhere! This event is a free, interactive, and SO much fun!!! Just log in and join Sofia as she reads from her new bookย YOU ARE BRAVE!!!! What better way to increase awareness about Down syndrome and how we tackle everyday with bravery!!!! ๐Ÿ’™๐Ÿ’›