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Upcoming Events

Feb
24
Wed
Speech Intelligibility presentation
Feb 24 @ 7:00 pm
Speech Intelligibility presentation

Speech Intelligibility presentation: Why is speech difficult to understand in some children with Down syndrome

Wednesday, February 24, 2021 at 7 PM EST
Presented by Libby Kumin Ph.D., CCC-SLP, Professor Emeritus Loyola University Maryland, part of a three-part series sponsored by CDSPG.

Presentation is targeted for parents of children from age 4 to adulthood.
How can we help children with Down syndrome develop speech that is easier to understand? There are many factors that affect speech intelligibility in children and adults with Down syndrome but the occurrence and combination of factors are different for each person. Dr. Kumin will present a framework that can be used for identifying, analyzing, and treating the factors that affect speech intelligibility for your child, e.g. rate, articulation, oral motor skills and childhood apraxia of speech. Attendees will learn how to write IEP goals that target factors affecting speech intelligibility in your child and how to develop a home-school communication plan and to use home activities to practice speech skills. Handouts, forms and checklists will be included.

Mar
13
Sat
CHOP Trisomy 21 Clinic
Mar 13 all-day
CHOP Trisomy 21 Clinic
CHOP Symposium coming up on March13!!!!
Our member Helen Milligan, who is also a PT at CHOP, is looking forward to hearing Dr. Stein speak about behavior challenges and strategies! Helen will also be a presenter that day, so if you have a little one getting ready to walk, then her treadmill training talk is for you!!!! Lots of videos and tips to get you started! šŸ’™šŸ’›
Mar
20
Sat
Virtual Makinā€™ Music Event
Mar 20 @ 10:00 am
Virtual Makinā€™ Music Event
Join us for a morning of music and fun! DCDSIG will be hosting Makinā€™ Music from Media, Pa to join us virtually. They will bring high-energy fun with interactive, toe-tappinā€™, hand-clappinā€™ fun for kids (and grownups, too)! The class zoom link will follow.

Times:Ā Kids 6-12 –Ā 10amĀ | Kids 0-5 –Ā 11am

Zoom Link will be emailed to you. Sign up using the buttons below.

Sign Up Your 0-5 Year Old
Sign Up Your 6-12 Year Old
Mar
21
Sun
Happy World Down Syndrome Month!
Mar 21 all-day

3.21 IS WORLD DOWN SYNDROME DAY

To celebrate World Down Syndrome Day (3/21) the Delaware County Down Syndrome Interest Group is hosting a fundraiser with the chance to own a beautiful tumbler, pictured below. The 20 oz.Ā black tumbler features a three arrow design which is symbolic in the Down syndrome community. It represents the three copies of the 21st chromosome that occur in Down syndrome. An arrow must first be pulled back in order to expel forward. While the initial diagnosis may cause a “pull-back” thanks to support, community and love your arrow will quickly be sprung forward to amazing heights! This quote is meaningful to the lucky few that get to experience life with a family member or loved one who has DS.

$15 per tumbler = black with silver decoration
Details about the fundraiser:

$15 per tumbler
Colors: Black tumbler with a choice of silver arrows (pictured above), Black tumbler with DS yellow and blue arrows

Two options for receiving your tumbler:
pick-up at a local Delco locations (time and places TBD), shipping (shipping cost will be added to final price).

This fundraiser will run throughout the month of March.

If you would like to order a tumbler, please complete the order form by clicking the link below.

ORDER FORM

WAYS TO CELEBRATE

ROCK YOUR SOCKS
Wear your most colorful or mismatched socks!

WEAR BLUE & YELLOW
These are the colors used to raise awareness for Down Syndrome.

Remember, we are more alike than different! People who have Down Syndrome can and will do all the same this you do, it just takes a little more time. BE KIND. BE INCLUSIVE.

Apr
10
Sat
DSIG Presents an Evening with Evan the Magician
Apr 10 @ 6:00 pm
DSIG Presents an Evening with Evan the Magician
Join us for a fun-filled interactive session with Evan the Magician! This boredom-busting virtual magic show will leave children (and adults) beaming with joy, belly laughing, and wide-eyed with amazement! This event is open to ALL members of DelcoDSIG! We hope you can join us in the fun and magic!!

Zoom Link will be emailed to you. Sign up using the buttons below.

Sign Up For the Magic Show
Apr
20
Wed
Delco DSIG Spring Fling 2022
Apr 20 @ 6:00 pm ā€“ 9:00 pm
Delco DSIG Spring Fling 2022

DSIG is excited to host our first in person event in over two years!

šŸŒøšŸŒ·šŸŒ¼

Please join us onĀ Wednesday, April 20th from 6 to 9PM at Paxon Hollow Country Club for a Spring FlingĀ event. This event will be held with no restrictions regarding masking or vaccination status.

Please RSVP to Megan Califano,Ā [email protected], by Wednesday, April 13th. Please provide your family name, number of adults, number of kids (12 and under) and any dietary restrictions. Please note: we will try to accommodate these dietary requests, but all may not be possible.

RSVP NOW

As in years past, we ask that you RSVP responsibly.Ā With the rising costs of these events we are introducing a new policy where you will be charged should you RSVP and not show up for the event.Ā We understand emergencies and other situations occur however, the organization can no longer absorb the cost of these events when people are a no show. For this particular event, we ask that if there is a change to your RSVP that you notify us within 24 hours of the event. If we are not notified in the appropriate amount of time, you will be charged the amount that the organization was charged for your plate. You will be required to pay that before you will be allowed to attend any other DSIG events. We hope that you understand how hard it was for us to make this decision, but this is our way of trying to keep all of our events free of charge for our families. We appreciate your understanding and thank you for your support in this matter.

Additionally, we will be collecting annual dues at this event, dues have not changed as we are still only charging $10 per family. As a reminder, this is a nominal commitment for your support of our organization.

We hope to see you on the 20th!

Apr
23
Sun
Phillies Down Syndrome Awareness Night @ Citizens Bank Park
Apr 23 @ 12:05 pm
Phillies Down Syndrome Awareness Night @ Citizens Bank Park

Tickets Are Limited So Don’t Delay!

DATE:Ā April 23rd, 2023
TIME: Starts atĀ 12:05pm
GAME: Phillies vs. Rockies
PROMO CODE:Ā DSAN
TICKETS: Order Here

Please join your fellow Down Syndrome Families from across the region at Down Syndrome Awareness Day with the Phillies!!!!

Please use our specific code ā€œDSANā€ for this year’s Down Syndrome Awareness Day with the Philadelphia Phillies (The National League Champions).Ā  The game will be against the Colorado Rockies at 12:05pm,on April 23rd. Itā€™s also the Phanaticā€™s birthday, so children under 14 get a free Phanatic t-shirt!

AND EVERYONE OF ALL AGES is welcome and encouraged to attend as we rally together for our Down Syndrome Community in the Delaware Valley!

If you have never attended, we cannot wait to meet you in person! Please know, this is an event you do not want to miss! Besides the fact that it will most likely be a high scoring game, it is an opportunity to meet your social media friends from the Delaware Valley in person at one general location, providing you get tickets with our code.

For those who have attended, I know you enjoyed yourself in the past and we cannot wait to see you again. Hopefully, the weather will be perfect for us!

As a token of thanks and to continue raising AWARENESS for DOWN SYNDROME and INCLUSION in our community we give out a limited amount of..

T-SHIRTSĀ to those WHO USE THE LINK OR CALL IN WITH OUR CODE ā€œDSANā€ TO PURCHASE TICKETS, on a first come basis at our table (exact location for t-shirt pick-up will be sent the day of the event).

By all means, use this meeting place to mingle! Use this time to meet up with OUR T21 FAMILIES who live in PA, NJ and DE! Additionally, this is a great time to take pictures for social media!

Depending on our ticket sales number, we could be given more perks. For example, one of our loved ones with T21 could throw out the first pitch and a pre-game video! Can you help to make this happen? If so, donā€™t delay purchasing your tickets!

How this works:
Rally your friends and family to celebrate Down Syndrome in the Delaware Valley while watching the Phillies at Citizens Bank Park.

Clink on the link below for seating charts and prices.

We have seats reserved in sections for different pricing and locations.
(The past few years the lower level seats have sold out first, so please plan accordingly.)

Tickets are subject to availability, there have been years we sold out, this is our 14th year!

Overall we average about 650 tickets each season; for those who support our DS community, please donā€™t delay placing your order!

Additionally, the more tickets we sell the more likely we are able to receive additional perks and funds which enable us to do other community outings throughout the year.

The link to purchase tickets with the prices and seating options is below.

BUY TICKETS

View Seating Options

May
19
Fri
Family Fun Night At Betteā€™s Family Fun Center On May 19th @ Betteā€™s Family Fun Center
May 19 @ 5:30 pm ā€“ 7:30 pm
Family Fun Night At Betteā€™s Family Fun Center On May 19th @ Betteā€™s Family Fun Center

The Board of the DSIG is excited to welcome our new families to the group with a private event for ALL families with children 12 years of age and younger. This is a great opportunity to hang out with other members in our group and to continue/form necessary friendship and support!

Join us for a night of fun for a private event at Betteā€™s Family Fun Center onĀ May 19th from 5:30-7:30pm. Pizza, snacks, and drinks will be provided!

Remember, your annual dues ($10) must be paid in order to attend the event. You can mail your dues to our PO Box (P.O. Box 5066, Springfield, PA 19064) before 5/12, or pay your dues at the event (please bring cash).

RSVP (with adult/kid headcount) by May 1st, 2023 to Christa via text (610)636-9872, or emailĀ [email protected].

May
20
Sat
Down To Box Is Coming To DELCO!! @ Jabz Boxing
May 20 @ 1:00 pm

šŸ„ŠWe Are So Lucky!!šŸ„Š
Down To Box Is Coming To DELCO!!

 

Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!

Down to Box is conducting a coachesā€™ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.

Please emailĀ [email protected]Ā to sign up. There is no cost to attend- this is a mini demo class that is part of our coachesā€™ training that day.

Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.

Jul
2
Sun
Apply for Camp Pals 2023 Summer Camp @ Cabrini University
Jul 2 @ 9:00 am ā€“ Jul 8 @ 3:00 pm
Apply for Camp Pals 2023 Summer Camp @ Cabrini University

Join us in the city of brotherly love at PALS Philadelphia!

  • Leaders arrive Fri., June 30
  • Peers arrive Sat., July 1 (PM)
  • Partners arrive Sun., July 2
  • TIMES: TBA

Philadelphia – 1

PROGRAM SIZE:
Large (around 150 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.

AGES:
18+

APPLY HERE āžœ


Philadelphia – 2

PROGRAM SIZE:
Medium (around 100 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.

AGES:
12 – 17 (15-17 for Peers without DS) & 18+

APPLY HERE āžœ