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Upcoming Events

Jan
24
Thu
January 2019 RMM @ Hancock United Methodist Church
Jan 24 @ 7:00 pm ā€“ 9:00 pm

The meeting you have been asking forā€¦

It wasnā€™t easy, but we were able to find a dentist come and speak to our group. Dr. Annie Creato from Kids Teeth agreed to present at our meeting.

Mar
28
Thu
DelcoDSIG RMM Meeting: March, 2019 @ Hancock United Methodist Church
Mar 28 @ 7:00 pm ā€“ 9:00 pm
DelcoDSIG RMM Meeting: March, 2019 @ Hancock United Methodist Church

Hope everyone had fun rocking their socks in celebration of World Down Syndrome Day! šŸ’›šŸ’™

DSIG March RMM

Guest Speaker: Karen Carr,
PA Treasury Field Representative
Karen Carr will enlighten us on the topic of PA ABLE Accounts.

Date: 3/28/19

Time: Doors open at 7 pm and the meeting begins at 7:30 pm

Where: Hancock United Methodist Church 542 Wesley Road,
Springfield, PA 19064
Click here for directions.

We hope to see you there!

May
5
Sun
Down Syndrome Awareness Night at The Phillies @ Citizens Bank Park
May 5 @ 2:05 pm ā€“ 5:15 pm

Are You Ready for Some Baseball?

Join your friends from DSIG & the T21 Group for the 10th Annual Down Syndrome Awareness Day at the Phillies!

Date:Ā Sunday, May 5th

Game time:Ā 2:05pm

Phillies v. Washington Nationals (Bryceā€™s old team)

Seats: Section 206 and 207 (Handicap Accessible Seating is available).

Promotion:Ā  Phillies celebrate Motherā€™s Day.Ā  Every young lady 15 years and older will receive a Ladies Fleece Pullover

There will be 2 ticket options this year as The T21 club is hosting a pre-game tent partyĀ from 12:00-1:30pm.

Option 1:Ā  Purchase a game ticket only for $38.00. (Children 3-under are free but do not have their own seat.Ā  Lap time!)

Option 2: Ā Ages 11-up ticket for Pre-game Tent party and seat in Sec 206-207 are $78.00

Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā  Ages 6-10 ticket for Pre-game Tent party and seat in Sec 206-207 are $58.00

Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā  Ages 3-5 ticket for Pre-game Tent party and seat in Sec 206-207 are $38.00 (must enter with parent who purchased a $78.00 ticket)

Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā  Ages 3-under no charge but must enter with a parent who purchased a $78.00 ticket

The Pre-game Tent Party will include a ballpark food buffet, soft drinks and water, a PHILLIES CAP, and a few special guests to visit with.Ā  There will be bartender service for a cash bar.

Tee-shirts (if sponsorship is obtained) may be given out at the Pre-game tent party only.Ā  Again that is not for certain.

I must have orders and payment prior toĀ April 1stĀ (no fooling!)Ā  Ticket order has to be placed byĀ April 5th.

If you would like to send a check please make payable to me Jack Malone Ā and if you would like to mail it to me:

4913 Jackson Drive Brookhaven, Pa 19015.

Please feel free to call me atĀ 484-682-5550Ā if you have any questions.

Thank you,

Jack Malone

Jun
2
Sun
No Regret 5K & 1 MILE WALK @ Ridley Creek State Park/ Pavilion #11
Jun 2 @ 7:00 am ā€“ 12:00 pm
No Regret 5K & 1 MILE WALK @ Ridley Creek State Park/ Pavilion #11

Sunday June 2, 2019

Ridley Creek State Park / Pavilion #11

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InkAway Laser Tattoo Removal is having a “No Regret 5K Run and 1 Mile Walk” at Ridley Creek State Park on Sunday, June 2, 2019. Learn more about the event in the description below and let us know if you are available to volunteer for the event.

PLACE
1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

DESCRIPTION
Help us support a great event that benefits the Down Syndrome Interest Group of Delaware County.

Location:
Ridley Creek State Park Area 11

Awards:
Top 1-3 Overall
$150.00 to 1st place finisher
$75.00 to 2nd place finisher
$50.00 to 3rd place finisher

Amenities:
Please join us on Sunday June 2, 2019 at Ridley Creek State Park (picnic Area 11) for the 1st Annual Inkaway No Regret 5K run and 1 mile walk to benefit the Down Syndrome Interest Group of Delaware County. The 5K race starts at 8:00 AM and the 1 mile walk begins at 8:05AM. This course is USATF certified.

Race day registration begins at 7:00 AM.
Water stations will be available for the 5K run at mile 1.5 and at the finish line; post-race refreshments and snacks will also be provided; Finisher medal for all participants; T-shirt to all participants while supplies last

Packet Pickup will take place at Inkaway Laser Tattoo Removal- 220 Wilmington West Chester Pike (Rt. 202), Chadds Ford, PA 19317 on Friday, May 31st from 5-7PM and Saturday June 1st from 4-7PM.

The Delaware County Down Syndrome Interest Group (DSIG) was formed in 1990 by a group of families touched by Down Syndrome in Delaware County, who are dedicated to living successfully. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome.

Race Results:
Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Questions:
Contact: Stephanie Sapp, [email protected], (484) 840-8663

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Nov
1
Sun
Run for Homies with Extra Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 1 @ 9:30 am ā€“ 1:30 pm

 

Sunday November 1 at 9:30 AM

Ridley Creek State Park / Pavilion #11

Use Discount codeĀ homies20offĀ 
for 20% off the registration fee.

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Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County. This course is USATF certified. Walkers are also welcomed to join!

PLACE
1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

DESCRIPTION
Help us support a great event that benefits the Down Syndrome Interest Group of Delaware County.

Location:
Ridley Creek State Park Area 11

Date and time:
Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Course Support:
Due to Covid-19 there will not be any water stops

Race Details:
Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County. Ā This course is USATF certified. Walkers are also welcomed to join!

Awards:
Top 1-3 Male and Female
$150.00 to 1st place finisher
$75.00 to 2nd place finisher
$50.00 to 3rd place finisher

T-Shirts and a running buff will be provided to all participants while supplies last.

Amenities:
Please join us on Sunday June 2, 2019 at Ridley Creek State Park (picnic Area 11) for the 1st Annual Inkaway No Regret 5K run and 1 mile walk to benefit the Down Syndrome Interest Group of Delaware County. The 5K race starts at 8:00 AM and the 1 mile walk begins at 8:05AM. This course is USATF certified.

Pre-race packet pickup:
Sunday, November 1, 2020 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking:
Free Parking at Pavillion 11A & B

Race Results:
Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found atĀ brynmawrracing.com

Questions:
Contact: Stephanie Sapp,Ā [email protected],Ā (484) 840-8663

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back. Ā Thank you for understanding and following these precautions to ensure everyone’s safety.

  1. The race will be capped at 200 runners to limit crowds.
  2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
  3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
  4. There will be rolling start times.
  5. Awards will be based on chip time, including overall winners.
  6. All volunteers tasked with serving the runners will be wearing masks.
  7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

 

Thank you to ourĀ sponsors

 

GOLD

SILVER

BRONZE

VALUED SPONSOR

Sponsorships Donations, and Volunteers:
There are a number of ways to get involved in the 5K Run for Homies with Extra Chromies. Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits. Volunteers, please register on this website. Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance. To obtain more information, please contact Stephanie Sapp atĀ (484)840-8663Ā or emailĀ [email protected].

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visitĀ https://delcodsig.org/

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Mar
13
Sat
CHOP Trisomy 21 Clinic
Mar 13 all-day
CHOP Trisomy 21 Clinic
CHOP Symposium coming up on March13!!!!
Our member Helen Milligan, who is also a PT at CHOP, is looking forward to hearing Dr. Stein speak about behavior challenges and strategies! Helen will also be a presenter that day, so if you have a little one getting ready to walk, then her treadmill training talk is for you!!!! Lots of videos and tips to get you started! šŸ’™šŸ’›
Apr
23
Sun
Phillies Down Syndrome Awareness Night @ Citizens Bank Park
Apr 23 @ 12:05 pm
Phillies Down Syndrome Awareness Night @ Citizens Bank Park

Tickets Are Limited So Don’t Delay!

DATE:Ā April 23rd, 2023
TIME: Starts atĀ 12:05pm
GAME: Phillies vs. Rockies
PROMO CODE:Ā DSAN
TICKETS: Order Here

Please join your fellow Down Syndrome Families from across the region at Down Syndrome Awareness Day with the Phillies!!!!

Please use our specific code ā€œDSANā€ for this year’s Down Syndrome Awareness Day with the Philadelphia Phillies (The National League Champions).Ā  The game will be against the Colorado Rockies at 12:05pm,on April 23rd. Itā€™s also the Phanaticā€™s birthday, so children under 14 get a free Phanatic t-shirt!

AND EVERYONE OF ALL AGES is welcome and encouraged to attend as we rally together for our Down Syndrome Community in the Delaware Valley!

If you have never attended, we cannot wait to meet you in person! Please know, this is an event you do not want to miss! Besides the fact that it will most likely be a high scoring game, it is an opportunity to meet your social media friends from the Delaware Valley in person at one general location, providing you get tickets with our code.

For those who have attended, I know you enjoyed yourself in the past and we cannot wait to see you again. Hopefully, the weather will be perfect for us!

As a token of thanks and to continue raising AWARENESS for DOWN SYNDROME and INCLUSION in our community we give out a limited amount of..

T-SHIRTSĀ to those WHO USE THE LINK OR CALL IN WITH OUR CODE ā€œDSANā€ TO PURCHASE TICKETS, on a first come basis at our table (exact location for t-shirt pick-up will be sent the day of the event).

By all means, use this meeting place to mingle! Use this time to meet up with OUR T21 FAMILIES who live in PA, NJ and DE! Additionally, this is a great time to take pictures for social media!

Depending on our ticket sales number, we could be given more perks. For example, one of our loved ones with T21 could throw out the first pitch and a pre-game video! Can you help to make this happen? If so, donā€™t delay purchasing your tickets!

How this works:
Rally your friends and family to celebrate Down Syndrome in the Delaware Valley while watching the Phillies at Citizens Bank Park.

Clink on the link below for seating charts and prices.

We have seats reserved in sections for different pricing and locations.
(The past few years the lower level seats have sold out first, so please plan accordingly.)

Tickets are subject to availability, there have been years we sold out, this is our 14th year!

Overall we average about 650 tickets each season; for those who support our DS community, please donā€™t delay placing your order!

Additionally, the more tickets we sell the more likely we are able to receive additional perks and funds which enable us to do other community outings throughout the year.

The link to purchase tickets with the prices and seating options is below.

BUY TICKETS

View Seating Options

May
10
Wed
BINGO – Planning Meeting / Wed., May 10th at 7:00pm @ Zoom
May 10 @ 7:00 pm
BINGO - Planning Meeting / Wed., May 10th at 7:00pm @ Zoom

Join us for our Bingo Brainstorming Call onĀ Wednesday, May 10th at 7:00 pm.Ā  We will be brainstorming ideas for the next DSIG Bingo event (10/21/23), forming a bingo planning committee, and sharing feedback from past bingo events. If you are interested in helping brainstorm, soliciting donations, or joining the committee, join us from the comforts of your home.Ā Ā We appreciate ANY help you are willing to provide.

Zoom Information:
Join Zoom Meeting
https://us04web.zoom.us/j/95378571493?pwd=S2NIRFdtTHc1NWJsNHNGRFloZWlNQT09
Meeting ID: 953 7857 1493
Passcode: DSIG

 

May
20
Sat
Down To Box Is Coming To DELCO!! @ Jabz Boxing
May 20 @ 1:00 pm

šŸ„ŠWe Are So Lucky!!šŸ„Š
Down To Box Is Coming To DELCO!!

 

Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!

Down to Box is conducting a coachesā€™ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.

Please emailĀ [email protected]Ā to sign up. There is no cost to attend- this is a mini demo class that is part of our coachesā€™ training that day.

Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.

Jul
2
Sun
Apply for Camp Pals 2023 Summer Camp @ Cabrini University
Jul 2 @ 9:00 am ā€“ Jul 8 @ 3:00 pm
Apply for Camp Pals 2023 Summer Camp @ Cabrini University

Join us in the city of brotherly love at PALS Philadelphia!

  • Leaders arrive Fri., June 30
  • Peers arrive Sat., July 1 (PM)
  • Partners arrive Sun., July 2
  • TIMES: TBA

Philadelphia – 1

PROGRAM SIZE:
Large (around 150 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.

AGES:
18+

APPLY HERE āžœ


Philadelphia – 2

PROGRAM SIZE:
Medium (around 100 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.

AGES:
12 – 17 (15-17 for Peers without DS) & 18+

APPLY HERE āžœ