Upcoming Events

Jun
20
Tue
Tampon Training Workshop – CHOP SPECIALTY CARE @ CHOP SPECIALTY CARE
Jun 20 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

CHOP SPECIALTY CARE
3550 Market St. 3rd Floor
Philadelphia, PA. 19104
June 6 – 5pm or 6pm
June 20 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Jun
28
Wed
Tampon Training Workshop – KARABOTS PEDIATRIC CARE @ KARABOTS PEDIATRIC CARE
Jun 28 @ 5:00 pm

A Workshop for those who want information about starting to use a tampon.

LOCATIONS

KARABOTS PEDIATRIC CARE
4865 Market St.
Philadelphia PA. 19139
June 14 – 5pm or 6pm
June 28 – 5pm or 6pm

SPEAKERS

 

Helen Milligan, PT, DPT, PCS
Helen Milligan, PT, DPT, PCS
Physical Therapist

Anne-Ashley Field, OT
Anne-Ashley Field, OT
Occupational Therapist

Christina Sweeney, MSN, CPNP
Christina Sweeney, MSN, CPNP
Primary Care Practice

DETAILS ABOUT THE WORKSHOP

Recruiting participants to a workshop for those interested in starting to use a tampon. It will provide information about your body, parts of a tampon, and practice manipulating a tampon. Participants will participate in an educational workshop and complete surveys before and after the workshop to help us study the effectiveness of a workshop in assisting with tampon use (Understanding the role of tampons at menarche: Development and evaluation of an education toolkit IRB-#22-020269).

TO REGISTER

Scan the QR Code or please send an email to [email protected]

Aug
14
Mon
The Monthly Webinar Series: August 14th
Aug 14 @ 7:00 pm – 8:00 pm
The Monthly Webinar Series: August 14th

The next Monthly Webinar sponsored by Down Syndrome Association of Delaware, Perinatal Prana, and Highmark is this evening, August 14th  from 7 – 8pm.

It is an opportunity to share your journey with others to form an understanding of various topic areas. No pressure to share, listening only is okay, too! We look forward to seeing a few of our DSIG families!

 

JOIN THE MEETING

Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY

Sep
19
Tue
JOIN OUR WEBINAR: with Dr. Jonothan Santoro, Pediatric Neurologist
Sep 19 @ 10:18 am – 11:18 am

Join NDSS and Dr. Jonathan Santoro for a 𝒇𝒓𝒆𝒆 webinar about Down Syndrome Regression Disorder (DSRD) on September 19th at 7:00 PM ET!

💻 Dr. Santoro is the country’s foremost expert in studying, diagnosing, and treating DSRD. This webinar will be recorded but join live for an opportunity to ask questions at the end! Register at https://us02web.zoom.us/webinar/register/WN_fAL6fhHTR5GQOf-FE0MO7A

REGISTER NOW 

Sep
28
Thu
Parent Training: Strategies to Support Executive Functioning Skills
Sep 28 @ 6:00 pm – 8:00 pm

Join us Thursday, September 28, 2023 to talk about Strategies to Support Executive Functioning Skills! 6:00pm to 8:00pm via Zoom! Sign up using the registration link below by September 26, 2023.

SIGN UP TODAY  ➜

Oct
1
Sun
🌞Sunny Day Camp 2023🌞 @ Brandywine Youth Club
Oct 1 @ 9:30 am – 3:30 pm
🌞Sunny Day Camp 2023🌞 @ Brandywine Youth Club

The Pennsylvania State Police invites children and adults, with special needs, or disabilities and Special Olympics participants, with their families to join us for the first free law enforcement based “Sunny Day Camp” in Concord Township, Delaware County. This event will be held at the Brandywine Youth Club and is open to all residents. This will be a fun filled learning day with law enforcement for all ages. This event will be held rain or shine, with programs held indoors in case of inclement weather.

WHEN – Sunday, October 1, 2023 – Rain or Shine
WHERE – Brandywine Youth Club 47 Thornton Road, Glen Mills PA 19342

  • All individuals must register online at www.sunnydaycamp.org Troop K-Media
  • Sunny Day Camp is FREE with lunch and snacks included. Any questions can be referred to Trooper Jessica Tobin (610-558-7074) [email protected]
  • Troop K – Media Barracks (1342 W. Baltimore Pike, Media PA 19063)
  • Applicants must be a Special Olympic Participant, or a Adult/Child
  • with special needs, or disability. There is no age limit to attend
  • Sunny Day Camp participants must be accompanied, by a family member, or a guardian

REGISTER ONLINE

Understanding SSI and SSDI Work Incentives and Benefits WEBNINAR
Oct 1 @ 6:31 pm – 7:31 pm

🚨 Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?

This webinar on 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟒𝐭𝐡 𝐚𝐭 𝟏:𝟎𝟎 𝐏𝐌 𝐄𝐓 will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! 💥

Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.

𝐓𝐡𝐢𝐬 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 𝐰𝐢𝐥𝐥 𝐧𝐨𝐭 𝐛𝐞 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝, so be sure to register today!

REGISTER TODAY

Nov
5
Sun
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 5 @ 9:30 am – 12:00 pm
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11

Location

1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

 

Description

Date of race: Sunday, November 5 , 2023

Course certification number: PA190003NP

Name of event: 5K Run for Homies With Bonus Chromies

 

Location of event: Ridley Creek State Park Area 11

Race Details: Please join us on Sunday, November 5, 2023 at Ridley Creek State Park (picnic Area 11) for the fifth annual 5K Run for Homies with Bonus Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Course Support: Due to Covid-19 there will not be any water stops

Date and time: Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Awards: Top 1-3 Male and Female; $150.00 to 1st place finisher,  $75.00 to 2nd place finisher,  $50.00 to 3rd place finisher

Swag: TShirt, Swag Bags, meal ticket for the Brothers Pizza Food Truck, Lighteous Photography for race day photos

****We cannot guarantee shirt sizes for participants registered after 10/26/2021****

Sponsorships Donations, and Volunteers: There are a number of ways to get involved in the 5K Run for Homies with Bonus Chromies.  Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits.  Volunteers, please register on this website.  Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance.  To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected]

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit http://www.delcodsig.org/

Pre-race packet pickup: Sunday, November 5, 2023 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking: Free Parking at Pavillion 11A & B

Other Information: Brothers Food Truck with be providing food for participants which is included with registration, Lighteous Photography will be providing race day photos!

Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Contact: Stephanie Sapp, [email protected], (484) 840-8663

 

Follow Us on Social Media and Invite Your Friends!!!

Click here for our Facebook Page

Click here for our Instagram Page

 

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.
1. The race will be capped at 200 runners to limit crowds.
2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
4. There will be rolling start times.
5. Awards will be based on chip time, including overall winners.
6. All volunteers tasked with serving the runners will be wearing masks.
7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 5 @ 9:30 am – 12:00 pm
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11

Location

1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

 

Description

Date of race: Sunday, November 5 , 2023

Course certification number: PA190003NP

Name of event: 5K Run for Homies With Bonus Chromies

 

Location of event: Ridley Creek State Park Area 11

Race Details: Please join us on Sunday, November 5, 2023 at Ridley Creek State Park (picnic Area 11) for the fifth annual 5K Run for Homies with Bonus Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Course Support: Due to Covid-19 there will not be any water stops

Date and time: Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Awards: Top 1-3 Male and Female; $150.00 to 1st place finisher,  $75.00 to 2nd place finisher,  $50.00 to 3rd place finisher

Swag: TShirt, Swag Bags, meal ticket for the Brothers Pizza Food Truck, Lighteous Photography for race day photos

****We cannot guarantee shirt sizes for participants registered after 10/26/2021****

Sponsorships Donations, and Volunteers: There are a number of ways to get involved in the 5K Run for Homies with Bonus Chromies.  Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits.  Volunteers, please register on this website.  Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance.  To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected]

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit http://www.delcodsig.org/

Pre-race packet pickup: Sunday, November 5, 2023 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking: Free Parking at Pavillion 11A & B

Other Information: Brothers Food Truck with be providing food for participants which is included with registration, Lighteous Photography will be providing race day photos!

Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Contact: Stephanie Sapp, [email protected], (484) 840-8663

 

Follow Us on Social Media and Invite Your Friends!!!

Click here for our Facebook Page

Click here for our Instagram Page

 

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.
1. The race will be capped at 200 runners to limit crowds.
2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
4. There will be rolling start times.
5. Awards will be based on chip time, including overall winners.
6. All volunteers tasked with serving the runners will be wearing masks.
7. If you are not feeling well up to or on the day of the race, we ask that you stay home.