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Upcoming Events

Nov
1
Sun
Run for Homies with Extra Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 1 @ 9:30 am – 1:30 pm

 

Sunday November 1 at 9:30 AM

Ridley Creek State Park / Pavilion #11

Use Discount code homies20off 
for 20% off the registration fee.

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Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County. This course is USATF certified. Walkers are also welcomed to join!

PLACE
1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

DESCRIPTION
Help us support a great event that benefits the Down Syndrome Interest Group of Delaware County.

Location:
Ridley Creek State Park Area 11

Date and time:
Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Course Support:
Due to Covid-19 there will not be any water stops

Race Details:
Please join us on Sunday, November 1, 2020 at Ridley Creek State Park (picnic Area 11) for the second annual 5K Run for Homies with Extra Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Awards:
Top 1-3 Male and Female
$150.00 to 1st place finisher
$75.00 to 2nd place finisher
$50.00 to 3rd place finisher

T-Shirts and a running buff will be provided to all participants while supplies last.

Amenities:
Please join us on Sunday June 2, 2019 at Ridley Creek State Park (picnic Area 11) for the 1st Annual Inkaway No Regret 5K run and 1 mile walk to benefit the Down Syndrome Interest Group of Delaware County. The 5K race starts at 8:00 AM and the 1 mile walk begins at 8:05AM. This course is USATF certified.

Pre-race packet pickup:
Sunday, November 1, 2020 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking:
Free Parking at Pavillion 11A & B

Race Results:
Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at brynmawrracing.com

Questions:
Contact: Stephanie Sapp, [email protected](484) 840-8663

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.

  1. The race will be capped at 200 runners to limit crowds.
  2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
  3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
  4. There will be rolling start times.
  5. Awards will be based on chip time, including overall winners.
  6. All volunteers tasked with serving the runners will be wearing masks.
  7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

 

Thank you to our sponsors

 

GOLD

SILVER

BRONZE

VALUED SPONSOR

Sponsorships Donations, and Volunteers:
There are a number of ways to get involved in the 5K Run for Homies with Extra Chromies. Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits. Volunteers, please register on this website. Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance. To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected].

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit https://delcodsig.org/

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Dec
18
Fri
DSIG Virtual Holiday Party
Dec 18 @ 7:00 pm – 9:00 pm

The Temple University Taekwondo Club is excited to host this year’s DSIG holiday virtual party.

IMAGE: The Temple T logo with a figure of a person high kicking. Features text in Korean.

2 separate events will be held:

Group 1: will be geared toward our younger members 0-13
Topic: DSIG Virtual Holiday Party
Time: Dec 18, 2020 07:00 PM Eastern Time (US and Canada)
https://temple.zoom.us/j/92851379180
Meeting ID: 928 5137 9180
Group 2: will be geared toward the older members 13 and up
Topic: DSIG Virtual Holiday Party 2
Time: Dec 18, 2020 08:00 PM Eastern Time (US and Canada)
https://temple.zoom.us/j/92651265000
Meeting ID: 926 5126 5000
The parties will be about 45 minutes long with music and dancing. It is a holiday party so participants should dress festively; Holiday sweaters, Santa hats, stuff like that. Prizes will given out for several categories for each party:
👕 Best Dressed – person with the best holiday style
💃 Best Moves – person who had the best dance moves
⚡ Most Energy – person danced the most
🎼 Most Popular Song – person who requested the song everyone danced to/liked
(random person if multiple people requested the song)
🍀 Most Luck – a randomly chosen person (not already given a prize)
Sign Up Now
Jan
23
Sat
DSIG Virtual Conferences
Jan 23 @ 2:00 pm
DSIG Virtual Conferences

DSIG will be teaming up with DSA of Delaware and Chesapeake Down Syndrome Parent Group to present two virtual conferences for our families. The first virtual conference will be held on Saturday, 1/23/2021, from 2pm-4pm, featuring Dr. Brian Skotko. This virtual conference will appeal to families of all ages. His webinar will be covering two topics, “Brain Train: Smart Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome” and “Keeping Children and Adolescents with Down Syndrome Healthy: All the Medical Updates that Parents Need to Know”. Please see the attached conference brochure for more details. There will be no fee to attend this conference as DSIG will be absorbing all costs for participants.

The second virtual conference will take place on Thursday, 3/4/2021, at 7pm, featuring Stacy Taylor, a behavior analyst, and is entitled “Toilet Training Tips & Tricks”. DSIG will be absorbing the cost of this virtual 1.5 hr. webinar. On Friday, 3/5/2021 and Saturday, 3/6/2021, there will be time slots for virtual 1-hour, One-on-One Behavioral Consults with Stacy Taylor and her team to address any toilet training focused or otherwise general behavior concerns you may have. These 1:1 sessions could be for any age for any concerning behavior your child, young adult or adult with Down syndrome is experiencing. The cost of each session is $100/hr., so DSIG is asking that each family who is interested in the 1:1 sessions, pay the $100 when they sign up for the session to secure your spot, and once you attend the session, DSIG will refund you $75 of the money that you paid for the session. Of course, if this would be a hardship for anyone who would like to attend, please let Patty know.

Read the Workshop Document

Here is the sign up link for the 1:1 sessions. Please enter your name, email, and which DSA you are with.

 

Feb
13
Sat
Virtual Valentine’s Day
Feb 13 @ 7:00 pm
Host: Kratowicz Family / (215) 421-4375
When: Saturday, Februart 13 from 7pmto 8pm ET
Where: The Comfort of you home!We are celebrating Valentine’s Day with our DCDSIG teens and adults social distancing style with a virtual Valentine’s day dance party!

Wear your most comfy pajamas, favorite Valentine’s sweater, or dress in your Valentine’s day best; whatever makes you to feel loved! Get out your disco balls, balloons, glow bands and join the party! (My daugther Jane personally prefers to jump/dance on her mini trampoline to her favorite tunes!)

If you’d like to hear any particular songs at the party let me know with a comment when you respond to this evite. Please RSVP to this evite if you can make it! ❤️

CLICK HERE TO RSVP
Feb
24
Wed
Speech Intelligibility presentation
Feb 24 @ 7:00 pm
Speech Intelligibility presentation

Speech Intelligibility presentation: Why is speech difficult to understand in some children with Down syndrome

Wednesday, February 24, 2021 at 7 PM EST
Presented by Libby Kumin Ph.D., CCC-SLP, Professor Emeritus Loyola University Maryland, part of a three-part series sponsored by CDSPG.

Presentation is targeted for parents of children from age 4 to adulthood.
How can we help children with Down syndrome develop speech that is easier to understand? There are many factors that affect speech intelligibility in children and adults with Down syndrome but the occurrence and combination of factors are different for each person. Dr. Kumin will present a framework that can be used for identifying, analyzing, and treating the factors that affect speech intelligibility for your child, e.g. rate, articulation, oral motor skills and childhood apraxia of speech. Attendees will learn how to write IEP goals that target factors affecting speech intelligibility in your child and how to develop a home-school communication plan and to use home activities to practice speech skills. Handouts, forms and checklists will be included.

Mar
4
Thu
DSIG Virtual Conferences
Mar 4 @ 7:00 pm
DSIG Virtual Conferences

DSIG will be teaming up with DSA of Delaware and Chesapeake Down Syndrome Parent Group to present two virtual conferences for our families. The first virtual conference will be held on Saturday, 1/23/2021, from 2pm-4pm, featuring Dr. Brian Skotko. This virtual conference will appeal to families of all ages. His webinar will be covering two topics, “Brain Train: Smart Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome” and “Keeping Children and Adolescents with Down Syndrome Healthy: All the Medical Updates that Parents Need to Know”. Please see the attached conference brochure for more details. There will be no fee to attend this conference as DSIG will be absorbing all costs for participants.

The second virtual conference will take place on Thursday, 3/4/2021, at 7pm, featuring Stacy Taylor, a behavior analyst, and is entitled “Toilet Training Tips & Tricks”. DSIG will be absorbing the cost of this virtual 1.5 hr. webinar. On Friday, 3/5/2021 and Saturday, 3/6/2021, there will be time slots for virtual 1-hour, One-on-One Behavioral Consults with Stacy Taylor and her team to address any toilet training focused or otherwise general behavior concerns you may have. These 1:1 sessions could be for any age for any concerning behavior your child, young adult or adult with Down syndrome is experiencing. The cost of each session is $100/hr., so DSIG is asking that each family who is interested in the 1:1 sessions, pay the $100 when they sign up for the session to secure your spot, and once you attend the session, DSIG will refund you $75 of the money that you paid for the session. Of course, if this would be a hardship for anyone who would like to attend, please let Patty know.

Read the Workshop Document

Here is the sign up link for the 1:1 sessions. Please enter your name, email, and which DSA you are with.

 

 

Mar
13
Sat
CHOP Trisomy 21 Clinic
Mar 13 all-day
CHOP Trisomy 21 Clinic
CHOP Symposium coming up on March13!!!!
Our member Helen Milligan, who is also a PT at CHOP, is looking forward to hearing Dr. Stein speak about behavior challenges and strategies! Helen will also be a presenter that day, so if you have a little one getting ready to walk, then her treadmill training talk is for you!!!! Lots of videos and tips to get you started! 💙💛
Mar
20
Sat
Virtual Makin’ Music Event
Mar 20 @ 10:00 am
Virtual Makin’ Music Event
Join us for a morning of music and fun! DCDSIG will be hosting Makin’ Music from Media, Pa to join us virtually. They will bring high-energy fun with interactive, toe-tappin’, hand-clappin’ fun for kids (and grownups, too)! The class zoom link will follow.

Times: Kids 6-12 – 10am | Kids 0-5 – 11am

Zoom Link will be emailed to you. Sign up using the buttons below.

Sign Up Your 0-5 Year Old
Sign Up Your 6-12 Year Old
Mar
21
Sun
Happy World Down Syndrome Month!
Mar 21 all-day

3.21 IS WORLD DOWN SYNDROME DAY

To celebrate World Down Syndrome Day (3/21) the Delaware County Down Syndrome Interest Group is hosting a fundraiser with the chance to own a beautiful tumbler, pictured below. The 20 oz. black tumbler features a three arrow design which is symbolic in the Down syndrome community. It represents the three copies of the 21st chromosome that occur in Down syndrome. An arrow must first be pulled back in order to expel forward. While the initial diagnosis may cause a “pull-back” thanks to support, community and love your arrow will quickly be sprung forward to amazing heights! This quote is meaningful to the lucky few that get to experience life with a family member or loved one who has DS.

$15 per tumbler = black with silver decoration
Details about the fundraiser:

$15 per tumbler
Colors: Black tumbler with a choice of silver arrows (pictured above), Black tumbler with DS yellow and blue arrows

Two options for receiving your tumbler:
pick-up at a local Delco locations (time and places TBD), shipping (shipping cost will be added to final price).

This fundraiser will run throughout the month of March.

If you would like to order a tumbler, please complete the order form by clicking the link below.

ORDER FORM

WAYS TO CELEBRATE

ROCK YOUR SOCKS
Wear your most colorful or mismatched socks!

WEAR BLUE & YELLOW
These are the colors used to raise awareness for Down Syndrome.

Remember, we are more alike than different! People who have Down Syndrome can and will do all the same this you do, it just takes a little more time. BE KIND. BE INCLUSIVE.

Apr
10
Sat
DSIG Presents an Evening with Evan the Magician
Apr 10 @ 6:00 pm
DSIG Presents an Evening with Evan the Magician
Join us for a fun-filled interactive session with Evan the Magician! This boredom-busting virtual magic show will leave children (and adults) beaming with joy, belly laughing, and wide-eyed with amazement! This event is open to ALL members of DelcoDSIG! We hope you can join us in the fun and magic!!

Zoom Link will be emailed to you. Sign up using the buttons below.

Sign Up For the Magic Show