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This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact.ย Families of a child with Down syndrome ofย any ageย are encouraged to attend our virtual monthly support calls on the following topics:
Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.
Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.
Please contact Susan Blessington, Outreach Coordinator, atย [email protected]ย or Ari Avila, Spanish Outreach Coordinator, atย [email protected]ย for more details.
Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?
This webinar on ๐๐๐ญ๐จ๐๐๐ซ ๐๐ญ๐ก ๐๐ญ ๐:๐๐ ๐๐ ๐๐ will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more!
Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.
๐๐ก๐ข๐ฌ ๐ฐ๐๐๐ข๐ง๐๐ซ ๐ฐ๐ข๐ฅ๐ฅ ๐ง๐จ๐ญ ๐๐ ๐ซ๐๐๐จ๐ซ๐๐๐, so be sure to register today!
DATE:ย November 17, 2023
TIME:ย Starts at 7 pm
WHERE:ย GET Cafรฉ / 246 Haverford Ave, Narberth, PA 19072
“There will be a parent get together November 17th at the GET Cafรฉ at 7pm! Generally, we bring snacks/drinks to share–whatever you like.
Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.
It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! ๐
GET Cafรฉ is located at 246 Haverford Avenue, Narberth, PA 19072.
Feel free rsvp on this post, Facebook message me, email or text.
[email protected]ย / 215-421-4375
Hope to see you there!!
The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!
Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton
WCU Best Buddies is hosting our first ever inclusive and sensory friendly concert! Often, individuals with unique abilities and sensory needs are not able to attend/enjoy a concert, so we are hosting one that anyone and everyone can enjoy! The lights and sound will be sensory friendly, there will be a sensory area with fidgets and activities, dancing and singing along is not only allowed but encouraged, and we have several performers with disabilities. There will also be a raffle with some awesome prizes like gift cards and suite style Sixers tickets!
This event is open to anyone and is not limited to just Best Buddies! Tickets will be $15 ($5 if you come in a Best Buddies t-shirt) cash or Venmo at the door. Go to Facebook to learn more about this event.
Watchย Sofia Sanchez’sย Live Event onย Scholastic StoryVoiceย on World Down Syndrome Day from anywhere! This event is a free, interactive, and SO much fun!!! Just log in and join Sofia as she reads from her new bookย YOU ARE BRAVE!!!! What better way to increase awareness about Down syndrome and how we tackle everyday with bravery!!!! ๐๐
Sadly, we have to make the unfortunate decision to cancel the upcoming Egg Hunt that was scheduled for this weekend 3/24. The cancellation is due to a low turnout which we suspect is from it landing on a holiday weekend, and with individuals having Special Olympics swimming. Next year, we will make sure to plan it further in advance and pick a weekend that more people would be able to attend.
Thank you for understanding, and we hope everyone has a wonderful weekend!
DATE: March 27, 2024
TIME: 10:00am โ 2:00pm
LOCATION: Rivers Casino – 1001 N Delaware Ave, Philadelphia, PA 19125
If you are a caregiver to someone with intellectual and/or developmental disabilities, including autism, we invite you to our mini retreat! If you are a caregiver to someone with intellectual and/or developmental disabilities, including autism, we invite you to join us for a mini-retreat . This is your time to connect with other caregivers and learn about simple, yet effective ways to decompress while connecting with other caregivers. Lunch and snacks will be served.
Activities include:
Childcare is not provided, but you are welcome to have your family join you for this event.