May
19
Fri
May 19 @ 5:30 pm – 7:30 pm
The Board of the DSIG is excited to welcome our new families to the group with a private event for ALL families with children 12 years of age and younger. This is a great opportunity to hang out with other members in our group and to continue/form necessary friendship and support!
Join us for a night of fun for a private event at Bette’s Family Fun Center on May 19th from 5:30-7:30pm. Pizza, snacks, and drinks will be provided!
Remember, your annual dues ($10) must be paid in order to attend the event. You can mail your dues to our PO Box (P.O. Box 5066, Springfield, PA 19064) before 5/12, or pay your dues at the event (please bring cash).
RSVP (with adult/kid headcount) by May 1st, 2023 to Christa via text (610)636-9872, or email [email protected].
May
20
Sat
We Are So Lucky!!
Down To Box Is Coming To DELCO!!
Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!
Down to Box is conducting a coaches’ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.
Please email [email protected] to sign up. There is no cost to attend- this is a mini demo class that is part of our coaches’ training that day.
Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.
Jul
2
Sun
Join us in the city of brotherly love at PALS Philadelphia!
- Leaders arrive Fri., June 30
- Peers arrive Sat., July 1 (PM)
- Partners arrive Sun., July 2
- TIMES: TBA
Philadelphia – 1
PROGRAM SIZE:
Large (around 150 people)
LOCATION:
Cabrini University
MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.
AGES:
18+
Philadelphia – 2
PROGRAM SIZE:
Medium (around 100 people)
LOCATION:
Cabrini University
MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.
AGES:
12 – 17 (15-17 for Peers without DS) & 18+
Sep
11
Mon
REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents
This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:
- September 11 at 7pm – Mindfulness for New Parents
Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.
Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.
Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.
Oct
1
Sun
Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?
This webinar on 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟒𝐭𝐡 𝐚𝐭 𝟏:𝟎𝟎 𝐏𝐌 𝐄𝐓 will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! 
Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.
𝐓𝐡𝐢𝐬 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 𝐰𝐢𝐥𝐥 𝐧𝐨𝐭 𝐛𝐞 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝, so be sure to register today!
Nov
17
Fri
DATE: November 17, 2023
TIME: Starts at 7 pm
WHERE: GET Café / 246 Haverford Ave, Narberth, PA 19072
“There will be a parent get together November 17th at the GET Café at 7pm! Generally, we bring snacks/drinks to share–whatever you like.
Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.
It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! 😉
GET Café is located at 246 Haverford Avenue, Narberth, PA 19072.
Feel free rsvp on this post, Facebook message me, email or text.
[email protected] / 215-421-4375
Hope to see you there!!
Nov
30
Thu
Nov 30 @ 9:30 am – 4:30 pm
The PEAL Center is offering this incredible in-person event to rally a new generation of parents, self-advocates and their allies to push for more inclusive schools. Even though PA was the first state to ensure students with intellectual disabilities could attend public schools, today we rank 44th out of 50 states when it comes to including students with ID in regular ed. classes. We can do better. But we need a new generation of parents to stand up and lead the way. The event is FREE. Space is limited so register today!
Date: November 30
Time: 9:30 AM – 4:30 PM
Where: Harrisburg Hilton
REGISTER TODAY
Feb
24
Sat
WCU Best Buddies is hosting our first ever inclusive and sensory friendly concert! Often, individuals with unique abilities and sensory needs are not able to attend/enjoy a concert, so we are hosting one that anyone and everyone can enjoy! The lights and sound will be sensory friendly, there will be a sensory area with fidgets and activities, dancing and singing along is not only allowed but encouraged, and we have several performers with disabilities. There will also be a raffle with some awesome prizes like gift cards and suite style Sixers tickets!
This event is open to anyone and is not limited to just Best Buddies! Tickets will be $15 ($5 if you come in a Best Buddies t-shirt) cash or Venmo at the door. Go to Facebook to learn more about this event.
Mar
21
Thu
DATE & TIME: March 21st at 2pm ET
Watch Sofia Sanchez’s Live Event on Scholastic StoryVoice on World Down Syndrome Day from anywhere! This event is a free, interactive, and SO much fun!!! Just log in and join Sofia as she reads from her new book YOU ARE BRAVE!!!! What better way to increase awareness about Down syndrome and how we tackle everyday with bravery!!!! 💙💛
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