Upcoming Events

Apr
23
Sun
Phillies Down Syndrome Awareness Night @ Citizens Bank Park
Apr 23 @ 12:05 pm
Phillies Down Syndrome Awareness Night @ Citizens Bank Park

Tickets Are Limited So Don’t Delay!

DATE: April 23rd, 2023
TIME: Starts at 12:05pm
GAME: Phillies vs. Rockies
PROMO CODE: DSAN
TICKETS: Order Here

Please join your fellow Down Syndrome Families from across the region at Down Syndrome Awareness Day with the Phillies!!!!

Please use our specific code “DSAN” for this year’s Down Syndrome Awareness Day with the Philadelphia Phillies (The National League Champions).  The game will be against the Colorado Rockies at 12:05pm,on April 23rd. It’s also the Phanatic’s birthday, so children under 14 get a free Phanatic t-shirt!

AND EVERYONE OF ALL AGES is welcome and encouraged to attend as we rally together for our Down Syndrome Community in the Delaware Valley!

If you have never attended, we cannot wait to meet you in person! Please know, this is an event you do not want to miss! Besides the fact that it will most likely be a high scoring game, it is an opportunity to meet your social media friends from the Delaware Valley in person at one general location, providing you get tickets with our code.

For those who have attended, I know you enjoyed yourself in the past and we cannot wait to see you again. Hopefully, the weather will be perfect for us!

As a token of thanks and to continue raising AWARENESS for DOWN SYNDROME and INCLUSION in our community we give out a limited amount of..

T-SHIRTS to those WHO USE THE LINK OR CALL IN WITH OUR CODE “DSAN” TO PURCHASE TICKETS, on a first come basis at our table (exact location for t-shirt pick-up will be sent the day of the event).

By all means, use this meeting place to mingle! Use this time to meet up with OUR T21 FAMILIES who live in PA, NJ and DE! Additionally, this is a great time to take pictures for social media!

Depending on our ticket sales number, we could be given more perks. For example, one of our loved ones with T21 could throw out the first pitch and a pre-game video! Can you help to make this happen? If so, don’t delay purchasing your tickets!

How this works:
Rally your friends and family to celebrate Down Syndrome in the Delaware Valley while watching the Phillies at Citizens Bank Park.

Clink on the link below for seating charts and prices.

We have seats reserved in sections for different pricing and locations.
(The past few years the lower level seats have sold out first, so please plan accordingly.)

Tickets are subject to availability, there have been years we sold out, this is our 14th year!

Overall we average about 650 tickets each season; for those who support our DS community, please don’t delay placing your order!

Additionally, the more tickets we sell the more likely we are able to receive additional perks and funds which enable us to do other community outings throughout the year.

The link to purchase tickets with the prices and seating options is below.

BUY TICKETS

View Seating Options

May
10
Wed
BINGO – Planning Meeting / Wed., May 10th at 7:00pm @ Zoom
May 10 @ 7:00 pm
BINGO - Planning Meeting / Wed., May 10th at 7:00pm @ Zoom

Join us for our Bingo Brainstorming Call on Wednesday, May 10th at 7:00 pm.  We will be brainstorming ideas for the next DSIG Bingo event (10/21/23), forming a bingo planning committee, and sharing feedback from past bingo events. If you are interested in helping brainstorm, soliciting donations, or joining the committee, join us from the comforts of your home.  We appreciate ANY help you are willing to provide.

Zoom Information:
Join Zoom Meeting
https://us04web.zoom.us/j/95378571493?pwd=S2NIRFdtTHc1NWJsNHNGRFloZWlNQT09
Meeting ID: 953 7857 1493
Passcode: DSIG

 

May
19
Fri
Family Fun Night At Bette’s Family Fun Center On May 19th @ Bette’s Family Fun Center
May 19 @ 5:30 pm – 7:30 pm
Family Fun Night At Bette’s Family Fun Center On May 19th @ Bette’s Family Fun Center

The Board of the DSIG is excited to welcome our new families to the group with a private event for ALL families with children 12 years of age and younger. This is a great opportunity to hang out with other members in our group and to continue/form necessary friendship and support!

Join us for a night of fun for a private event at Bette’s Family Fun Center on May 19th from 5:30-7:30pm. Pizza, snacks, and drinks will be provided!

Remember, your annual dues ($10) must be paid in order to attend the event. You can mail your dues to our PO Box (P.O. Box 5066, Springfield, PA 19064) before 5/12, or pay your dues at the event (please bring cash).

RSVP (with adult/kid headcount) by May 1st, 2023 to Christa via text (610)636-9872, or email [email protected].

May
20
Sat
Down To Box Is Coming To DELCO!! @ Jabz Boxing
May 20 @ 1:00 pm

🥊We Are So Lucky!!🥊
Down To Box Is Coming To DELCO!!

 

Down to Box is launching in Ridley Park. May 20 we will be conducting a coaches training and the program will launch for regular weekly classes shortly after!

Down to Box is conducting a coaches’ training Saturday May 20 at Jabz Boxing (3488 Concord Rd, Aston, PA 19014). Children with Down syndrome and their siblings between the ages of 6-13 are welcome from 1-1:30pm and adults ages 14 and older with Down syndrome or other intellectual and developmental disabilities from 2-2:30pm.

Please email [email protected] to sign up. There is no cost to attend- this is a mini demo class that is part of our coaches’ training that day.

Participants will be doing footwork drills, light boxing techniques on a bag and with mitts, cardio and strength exercises- all for beginners.

Jul
2
Sun
Apply for Camp Pals 2023 Summer Camp @ Cabrini University
Jul 2 @ 9:00 am – Jul 8 @ 3:00 pm
Apply for Camp Pals 2023 Summer Camp @ Cabrini University

Join us in the city of brotherly love at PALS Philadelphia!

  • Leaders arrive Fri., June 30
  • Peers arrive Sat., July 1 (PM)
  • Partners arrive Sun., July 2
  • TIMES: TBA

Philadelphia – 1

PROGRAM SIZE:
Large (around 150 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional on-site for the duration of the week.

AGES:
18+

APPLY HERE ➜


Philadelphia – 2

PROGRAM SIZE:
Medium (around 100 people)

LOCATION:
Cabrini University

MEDICAL SUPPORT:
This program will have a licensed medical professional and two medical volunteers with applicable certifications on-site for the duration of the week.

AGES:
12 – 17 (15-17 for Peers without DS) & 18+

APPLY HERE ➜

Sep
11
Mon
September’s Monthly Webinar: Mindfulness for New Parents
Sep 11 @ 7:00 pm – 8:00 pm
September's Monthly Webinar: Mindfulness for New Parents

REGISTER TODAY: September’s Monthly Webinar: Mindfulness for New Parents

This program is a collaboration of health professionals and support staff from the DSA of DE and Perinatal Prana. This will serve as a pilot program as we monitor impact. Families of a child with Down syndrome of any age are encouraged to attend our virtual monthly support calls on the following topics:

Share your journey with others to form an understanding of various topic areas. These calls will be led by Perinatal Prana professionals and attended by DSA of DE Outreach Staff. No pressure to share, listening only is accepted.

Due to licensing of our medical professionals, individuals must live in the state of Delaware or be in the state of Delaware during the time of services. If you live outside the state but are willing to travel, we encourage you to participate.

Please contact Susan Blessington, Outreach Coordinator, at [email protected] or Ari Avila, Spanish Outreach Coordinator, at [email protected] for more details.

REGISTER TODAY

Oct
1
Sun
Happy Down Syndrome Awareness Month! 💙💛
Oct 1 all-day
Understanding SSI and SSDI Work Incentives and Benefits WEBNINAR
Oct 1 @ 6:31 pm – 7:31 pm

🚨 Are you a parent or caregiver of an individual with Down syndrome who is considering their first venture into the workforce or contemplating a return to work? Do you have questions about how employment might affect their benefits?

This webinar on 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟒𝐭𝐡 𝐚𝐭 𝟏:𝟎𝟎 𝐏𝐌 𝐄𝐓 will get into SSI Work Incentives, including the Ticket to Work program, the Medicaid buy-in program, and the array of SSDI Work Incentives like the Trial Work Period, the Continuation of Medicare Coverage, and more! 💥

Representatives from the Social Security Administration will also provide you with a clear understanding of SSI limits associated with assets and income that may impact these benefits and what happens if your loved one goes over these limits.

𝐓𝐡𝐢𝐬 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 𝐰𝐢𝐥𝐥 𝐧𝐨𝐭 𝐛𝐞 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝, so be sure to register today!

REGISTER TODAY

Nov
5
Sun
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11
Nov 5 @ 9:30 am – 12:00 pm
Run for Homies with Bonus Chromies 5K @ Ridley Creek State Park/ Pavilion #11

Location

1023 Sycamore Mills Road
Ridley Creek State Park/ Pavilion #11
Media, PA US 19063

 

Description

Date of race: Sunday, November 5 , 2023

Course certification number: PA190003NP

Name of event: 5K Run for Homies With Bonus Chromies

 

Location of event: Ridley Creek State Park Area 11

Race Details: Please join us on Sunday, November 5, 2023 at Ridley Creek State Park (picnic Area 11) for the fifth annual 5K Run for Homies with Bonus Chromies presented by InkAway Laser Tattoo Removal to benefit the Down Syndrome Interest Group of Delaware County.  This course is USATF certified. Walkers are also welcomed to join!

Course Support: Due to Covid-19 there will not be any water stops

Date and time: Race Day packet pickup and registration will take place from 8:15 am- 9:15 am. Race begins at 9:30 am

Awards: Top 1-3 Male and Female; $150.00 to 1st place finisher,  $75.00 to 2nd place finisher,  $50.00 to 3rd place finisher

Swag: TShirt, Swag Bags, meal ticket for the Brothers Pizza Food Truck, Lighteous Photography for race day photos

****We cannot guarantee shirt sizes for participants registered after 10/26/2021****

Sponsorships Donations, and Volunteers: There are a number of ways to get involved in the 5K Run for Homies with Bonus Chromies.  Even if you are not planning to run or walk in the event, please consider volunteering, making a tax-deductible donation, or sponsoring through your local business to receive great branding and advertising benefits.  Volunteers, please register on this website.  Click the button that says “volunteer” and enter your information so that we can keep a count and ensure that we leave nothing to chance.  To obtain more information, please contact Stephanie Sapp at (484)840-8663 or email [email protected]

Proceeds of the race will benefit The Delaware County Down Syndrome Interest Group (DSIG). DSIG is a 501(c) non-profit organization that was formed in 1990 by a group of families touched by Down Syndrome in Delaware County. They strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome. Their goals are to reach out to expectant and new parents of a child with Down Syndrome, to be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances, to aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome and to educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability. To learn more please visit http://www.delcodsig.org/

Pre-race packet pickup: Sunday, November 5, 2023 from 8:15 AM – 9:15 AM at Picnic Area 11 in RCSP

Parking: Free Parking at Pavillion 11A & B

Other Information: Brothers Food Truck with be providing food for participants which is included with registration, Lighteous Photography will be providing race day photos!

Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

Contact: Stephanie Sapp, [email protected], (484) 840-8663

 

Follow Us on Social Media and Invite Your Friends!!!

Click here for our Facebook Page

Click here for our Instagram Page

 

Covid-19 Safety Measures:

We will be updating our safety precautions so please check back.  Thank you for understanding and following these precautions to ensure everyone’s safety.
1. The race will be capped at 200 runners to limit crowds.
2. Social distancing will be practiced. We have plenty of space to spread out and everything takes place outside.
3. Face coverings are required when picking up bibs, swag, food, awards, or anytime appropriate social distancing is not possible. For example, after you catch your breath after your race, put on a mask while walking around to collect food, a cold beverage, talking to friends, or walking to your vehicle. A mask does not need to be worn while running the race but is mandatory before and after.
4. There will be rolling start times.
5. Awards will be based on chip time, including overall winners.
6. All volunteers tasked with serving the runners will be wearing masks.
7. If you are not feeling well up to or on the day of the race, we ask that you stay home.

Nov
17
Fri
Invitation from member Sara Jane Wolff to a Parent Get Together.
Nov 17 @ 7:00 pm
Invitation from member Sara Jane Wolff to a Parent Get Together.

DATE: November 17, 2023
TIME: Starts at 7 pm
WHERE: GET Café / 246 Haverford Ave, Narberth, PA 19072

“There will be a parent get together November 17th at the GET Café at 7pm! Generally, we bring snacks/drinks to share–whatever you like.

Please let us know if you plan to come. It’s been a while, so it will be great to see as many folks as possible and catch up, and also to meet some new members. Please tell friends who may not be on Facebook.

It has been so nice to meet up with parents on this particular journey in the past; a great way to resource share and chat about issues that can be particular to our kiddos with a dual Down syndrome/ASD diagnosis (and a good excuse to have a glass of wine and vent)! 😉

GET Café is located at 246 Haverford Avenue, Narberth, PA 19072.

Feel free rsvp on this post, Facebook message me, email or text.

[email protected] / 215-421-4375

Hope to see you there!!

EMAIL TO RSVP

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