Upcoming Events

Below is an email from our friends at the T21Club of Philadelphia. They are again sponsoring a Down Syndrome Awareness Day at the Philly Zoo. The email provides all the information needed to sign up for this great event:

The information is finally here about our regional Down Syndrome Awareness Day at the Philadelphia Zoo on September 15th, 2013! This event is not just for families who have a child with the diagnosis of Down syndrome; ALL are welcome to this great event!
If you have attended in the past, we hope to see you again. If you have not attended, lets make this your first year.  It is going to be a great day to, Celebrate Down Syndrome in the Delaware Valley!

If you did not know a ton of great things have happened at the Philadelphia Zoo this past year! Such as the new parking garage, and a much easier traffic layout as you enter and leave the Zoo. They now even have an APP for your IPhone. But most of all, KIDZOOU is now OPEN! For more details visit  http://www.philadelphiazoo.org/

Tickets will be a discounted $15 per person (children under 2(two) are free).
Furthermore, we are asking those who have a Philadelphia Zoo Membership for a $10 contribution per person, before August 25th.  This is to receive a t-shirt and the face-painting.

You will be able to visit the Zoo between the hours of 9:30AM till 5PM, you will also have family fun and vendors at the Peacock Pavilion between the hours of 11AM-3PM.  You are more then welcome to pack a lunch, bring it to the Pavilion then mingle with family, friends and our vendors.

We are asking for everyone to please pre-register before August 31th, so we can order you a FREE t-shirt, and get “team names” on the t-shirts. For a team name to be listed on the shirt you need ten(10) people who pre-register, no exceptions.  Face painting is only for those who purchase tickets in advance.  We are sad to say, if you do not purchase your tickets in advance, you will not get a t-shirt.(For an extra $5 fee per shirt; you can order 2XL OR 3XL for your adult sizes in advance, for those who pre-register.) We have attached the pre-registration form to this email.

Tickets are to be picked up at the Zoo’s Main Entrance, at our table the day of the event.  Tickets will still be available the day of the event (at the Main Entrance) for the discounted rate (with cash or a check) and you will then be welcome to participate in the fun day activities. For members that do not pre-register, we are asking for a $5 contribution, the day of the event. All funds are none refundable.

Attached to this e-mail you will find:
PRE-Registration Form/Contribution Form

By all means if anyone has any questions just contact me.

See you at the Zoo!
Fondly,
Jenn Bonawitz
& The T21 Club
215-990-8730
[email protected]
www.T21CluboftheDelawareValley.org

Here’s information for an upcoming Golf Outing to benefit the Delaware County Special Olympics:

TIME: 1:30 PM Shotgun Start (Lunch/Registration – 12:30 PM)
COST: $125.00 Golf, Lunch, Dinner or $40 Dinner Only @ 7:00 PM

Golf Tournament Invite

This month’s meeting will be an open forum.

Who is Flyered up?

Please save the date for Down Syndrome Awareness Day with Philadelphia Flyers! It is a 1pm game on November 9th, 2013. Tickets are very limited so it will be on a first come first serve basis. This outing is sponsored by the T21 Club of Delaware Valley. More information will be forth coming from Jennifer Bonawitz of the T21 Club. Stay tuned.

This years Down Syndrome Awareness Day with the Philadelphia Flyers will be November 9^th!
There are only a handful of tickets left. If interested, please email us ASAP. Thanks!

“Inclusion, Relationships for ALL!” hosted by Pennsylvania’s Education for All Coalition to be held November 15 – 16, 2013 at PaTTAN in King of Prussia. Featured keynote address by Dr. Cathy Taschner, so mark your calendars and watch for more updates! Registration will open soon. For more information visit www.paedforall.org.

Download the Brochure

Register online and Pay by PayPal

Register online and Pay by Check

Download the Registration Form

DSIG February RMM – Using the Treadmill to teach Children with Trisomy 21 how to Walk

Date: Thursday, 2/27/14

Time: Doors open at 7pm with presentation beginning at 7:30pm

Location: Hancock United Methodist Church, Springfield, PA

Child Care will be provided
Current research by Ulrich and colleagues has shown that treadmill training can help babies with Down syndrome learn to walk sooner and more efficiently. A subsequent study by Wu, Ulrich and colleagues demonstrated that treadmill training can also improve a child’s gait by manipulating the intensity of training. This workshop will discuss the recent treadmill training studies and how therapists and families can implement the research findings in their own homes.
The workshop presenter, Helen Milligan, MPT, is Aidan Milligan’s mother and a member of the Delco DSIG. She is a Physical Therapist at The Children’s Hospital of Philadelphia and a therapist in Early Intervention. She has been utilizing treadmill training in her therapy practice and will share some practical advice that has been helpful in motivating children and families with this approach. Videos will be a part of the presentation.

Hope to see you on the 27th!

Even if you do not have a little person who can benefit from this information, we’d love to see you at the meeting to share your journey with those younger parents to show them that… it’s going to be OK!

The next DSIG Board meeting is scheduled for Tuesday, 3/18/14 at 7pm @ the home of Yuhanna and Shirley Bishar.  Contact us for further details if you are interested in joining our DSIG Board.

We are always looking for new DSIG Board Members, so if you feel that you have the time to commit to this great organization, please contact us for more information.

Educational Series

 

The Trisomy 21 Program at The Children’s Hospital of Philadelphia, in cooperation with Hinkle, Fingles & Prior, attorneys at law, is hosting a two-part educational series on March 22 and April 26, 2014. The events will provide important information to families of children and adults with Down syndrome. The first session will focus on concerns that may arise during your child’s school-age years. The second session will educate you about resources and services available for you and your adult child after age 21.

 

We encourage you to attend both sessions. Space is limited, so please register early.

 

Please note: Childcare will not be provided.

Event 1: Special Education and Secondary Education

Saturday, March 22, 2014
8:30 a.m. to 12:15 p.m.
Ruth M. and Tristram Colket, Jr. Translational Research Building, CHOP Main Campus

 

Event agenda:

9 a.m.-12:15 p.m. — Attorney Consultations (Optional)

9-10:30 a.m. — Breakout Session 1 (Choose one)

• Achieving Effective Inclusive Education (Room 1)
• Secondary Education Part I (Room 2)

10:30-10:45 a.m. — Break (Room 1) 

10:45 a.m.-12:15 p.m. — Breakout Session 2 (Choose one)

• Obtaining and Securing Related Services (Room 2)
• Secondary Education Part II (Room 3) 

12:15 p.m. — Adjourn

 

 

DSIG March RMM – Post Secondary Education

Come hear DSIG families and young adults speak about their experiences with post secondary education.

Date: Thursday, 3/27/14
Time: Doors open at 7pm with presentation beginning at 7:30pm
Location: Hancock United Methodist Church, Springfield, PA
Child Care will be provided.

Hope to see you on the 27th!

24th Annual “Walk for Our Kids” – A Walk for Down Syndrome

Please join us for another morning of FUN and friendship. We will be in need of Silent Auction items and baskets for our Basket Raffle. Also, if you have a suggestion for a new sponsor for this year, please contact Patty at, [email protected].

We will also need volunteers to help the morning of the walk, so please consider helping out. This is our main fundraiser for the year and it allows us to continue to sponsor events for our families throughout the year.

Join us for food, fun, and entertainment. This is a great chance for individuals, families, and the community to get together to help make a tremendous difference in the lives of those with Down Syndrome.

 

A Special Thanks to Our Sponsors:

A “Friend of DSIG”

S.J. Thomas Co., Inc.

James M. Tyler, Attorney At Law

Larry Robinson & Sons Builders Contractors Inc.

MSI Tool Repair & Supply

Steamfitters’ Local Union 420 United Association

Haggerty’s Landscape & Design, LLC

Genesis Engineers, Inc.

Rock for CHOP

Neumann University

In Loving Memory of Joseph W. Farrell

Joseph A. Ward Funeral Home, Inc.

John Vena, Inc.

BeneServ Corporate Benefit Services, Inc.

Jennifer Kearney Photography

De LaSalle String Band Orchestra

Makin’ Music

State Road Builders Supply Co., Inc.

Nuss Printing, Inc.

Springfield Mall

Starbucks Coffee

Wawa

Pepsi Cola

Center City Pretzel Co., Inc.

Faux Tale

The Bannister Family

The Bruno Family

Christa Califano, Christa’s Custom Cakes

Marie Califano

Julia Cavicchio

The Farthing Family

The Haggerty Family

The Hamilton Family

Havertown Post Office Mail Carriers

The Hegman Family

The Irvello Family

Kelly’s Kandy and Nuts, Collingdale, PA

Bridget LaSalle and Jeff Bagley

Irene and Tony LaSalle

Michelle and Anthony LaSalle, Jr.

Cathy Ludwick

C.J. Luther

Nick Luther

Chloe, Charlotte and Shane MacMullett

Chloe’s Cousins

Kevin & Cosette MacMullett

Kim MacMullett

Maggiano’s Restaurant, King of Prussia, PA

The Maguire Families

Anna Maturo

The Oakes Family

Gary Quillen, MooSa Black Belt Academy, Aston, PA

Nick Sabatino, INKWELL Tattoo, Upper Darby

The Short/Lees Family

Katie S. Taylor, getyourgifthere.com

Zanna Tilson

The Tyler Family

Marc Voci Salon, Folsom, PA

 

A special “Thank You” to all of our DSIG families and friends who helped to make the 2013 “Walk for Our Kids” such a huge success!