- Summer Picnic
- This year's Summer Picnic will be held Thursday August 22nd at the Willows from 6:00 PM till 9:00 PM. DJ dancing and dinner will be provided. Please RSVP to Megan Califano at 484-472-8347 and via e-mail at [email protected]. Thanks!
- The Criminal Justice System
A broad overview of the criminal justice system and an open conversation about people with intellectual or developmental disabilities as victims, witnesses, or offenders and their interactions with the criminal justice system, police, judges, attorneys, parole /probation officers will be held Tuesday August 13, 2013, from 10 - 11:30 AM at Vision for Equality. The address is 718 Arch Street, Philadelphia, PA 19106. This special program is intended for both Self-Advocates and their Families
- do not have to have been involved in the criminal justice system
- may opt to join a committee to help develop materials for training
- Philadelphia Flyers Down Syndrome Awareness Day
Please save the date for Down Syndrome Awareness Day with Philadelphia Flyers! It is a 1pm game on November 9th, 2013. Tickets are very limited so it will be on a first come first serve basis. This outing is sponsored by the T21 Club of Delaware Valley. More information will be forth coming from Jennifer Bonawitz of the T21 Club. Stay tuned.
- Down Syndrome Awareness Day at the Philly Zoo
Attached below is an email from our friends at the T21Club of Philadelphia. They are again sponsoring a Down Syndrome Awareness Day at the Philly Zoo. The attached email will provide all the information needed to sign up for this great event:
The information is finally here about our regional Down Syndrome Awareness Day at the Philadelphia Zoo on September 15th, 2013! This event is not just for families who have a child with the diagnosis of Down syndrome; ALL are welcome to this great event!
If you have attended in the past, we hope to see you again. If you have not attended, lets make this your first year. It is going to be a great day to, Celebrate Down Syndrome in the Delaware Valley!
If you did not know a ton of great things have happened at the Philadelphia Zoo this past year! Such as the new parking garage, and a much easier traffic layout as you enter and leave the Zoo. They now even have an APP for your IPhone. But most of all, KIDZOOU is now OPEN! For more details visit http://www.philadelphiazoo.org/
Tickets will be a discounted $15 per person (children under 2(two) are free).
Furthermore, we are asking those who have a Philadelphia Zoo Membership for a $10 contribution per person, before August 25th. This is to receive a t-shirt and the face-painting.
You will be able to visit the Zoo between the hours of 9:30AM till 5PM, you will also have family fun and vendors at the Peacock Pavilion between the hours of 11AM-3PM. You are more then welcome to pack a lunch, bring it to the Pavilion then mingle with family, friends and our vendors.
We are asking for everyone to please pre-register before August 31th, so we can order you a FREE t-shirt, and get “team names” on the t-shirts. For a team name to be listed on the shirt you need ten(10) people who pre-register, no exceptions. Face painting is only for those who purchase tickets in advance. We are sad to say, if you do not purchase your tickets in advance, you will not get a t-shirt.(For an extra $5 fee per shirt; you can order 2XL OR 3XL for your adult sizes in advance, for those who pre-register.) We have attached the pre-registration form to this email.
The T21 Club of the Delaware Valley has a link for Pay Pal; for those who prefer to pay with a credit card in advance. This can be used for purchasing tickets or to make donations.
Here is the link for our website page with the PayPal link:
Tickets are to be picked up at the Zoo’s Main Entrance, at our table the day of the event. Tickets will still be available the day of the event (at the Main Entrance) for the discounted rate (with cash or a check) and you will then be welcome to participate in the fun day activities. For members that do not pre-register, we are asking for a $5 contribution, the day of the event. All funds are none refundable.
Attached to this e-mail you will find:
PRE- Registration Form/ Contribution Form.doc
By all means if anyone has any questions just contact me.
See you at the Zoo!
& The T21 Club
- September RMM
- Save the Date: September 26th 2013 at the Hancock Church. This month's meeting will be an open forum. Doors open at 7PM, meeting starts at 7:30PM.
- September Board Meeting
- The DelcoDSIG will hold their September Board Meeting on September 12th at Shirley and Yuhan Bishar's home, with a 7PM start time.
- Howard & Margie McKee 3rd Annual Golf Outing for the Benefit of Delaware County Special Olympics
Here's information for an upcoming Golf Outing to benefit the Delaware County Special Olympics:
DATE: Monday - September 16, 2013
LOCATION: Paxon Hollow Country Club
TIME: 1:30 PM Shotgun Start (Lunch/Registration – 12:30 PM)
COST: $125.00 Golf, Lunch, Dinner or $40 Dinner Only @ 7:00 PM You can download flyers from our website for more information:
Golf Tournament Invite.pdf
Golf Outing Entry Form.doc
Golf Outing Hole New Sponsors Form.doc
- Raider Belles Cheerleading
Team: Raider Belles
For: girls with Special needs Age: 7-11
What: learning the basics of cheer leading including cheers, motions, jumps, stunts and DANCE.
Where: We will cheer along side the Seniors during home games we will also perform a dance that will be taught from the start of the season.
Get Involved: Contact Kelly the cheer director at 484 410 4623 We will have a meeting the first night August 1st with parents.
- Eastern PA Inclusion Conference
- "Inclusion, Relationships for ALL!",
hosted by Pennsylvania's Education for All Coalition to be held November 15 - 16, 2013
at PaTTAN in King of Prussia. Featured keynote address by
Dr. Cathy Taschner, so mark your calendars and watch for more updates!
Registration will open soon. For more information visit www.paedforall.org.
- The Forever Friends Show
Forever Friends is a unique and exciting new inclusive children's show targeted for kids ages 2-7. It stars Chris Burke, the actor with Down syndrome best know as "Corky" on the hit ABC-TV series "Life Goes On" and Joe and John DeMasi. Forever Friends brings a message of love, friendship and inclusion as children follow Chris, Joe and John, their feline friend "Feedback" and their talking computer "Newton" on their various and fun filled adventures as they sing along, sign along, celebrate abilities and teach kids that we are all more alike than we are different. The show can be viewed here for free at www.ForeverFriendsShow.org
- Educational Advocacy Program
We are very excited our Educational Advocacy Program in partnership with the Arc of Delaware County and we are pleased to provide additional details about the plan and hopefully clear up any misconceptions about what the Program provides to our members. The Educational Advocacy Program will provide the following services:
- Educational Advocacy for our member families of Delaware County with an IEP or 504 Plan
- Covering children from Preschool through Graduating Seniors
- Up to six hours of service at no cost to five of our families
- Providing IEP Reviews, IEP Development Consultation, Classroom Observation, Inclusion Consulting, FBA & Positive Support Plan Collaboration, Education Placement Consulting, Mediation Consulting
- Contact Kelly Connnell, Education Advocate, Arc of Delaware County at 610-544-6600
- Download the Educational Advocacy Agreement / Information Release Form to be completed and returned to Kelly
- Delaware Cheerleaders Embrace Special Teammate
- Brian Taff from ABC News recently published a story on the 6ABC news site that featured Rachel Rhea from Newark High School. Rachel has Down Syndrome, a fact that in many places might have meant she wouldn't have gotten a chance to be on the high school cheerleading squad. But THIS high school team saw that this girl has skills. "We watched her do one of her cheers," said cheerleader Kristin Hilliard. "We saw how fast she does cheers and how she picks them up and then we brought her to the coach."
And the coach brought her on the team, and, as it turned out, into something like a family.
"The whole school has embraced her as part of our team," coach Jacqui Fournier told Action News. "She's just one of the girls with the rest of 'em." Read the rest of the story and view the video on the 6ABC website.
- Dr. Mom and the iPads Blog
- Here's an interesting Blog I encourage everyone to visit. Geralyn Arango, a Mom, a Professor, a passionate iPad user, and now a blogger blogging about the innovative attempts to incorporate an iPad to assist her son Nicholas and his IEP team, is hoping our Group can provide some feedback. Her son is 13 and has Down Syndrome, and has developed an affinity towards the iPad. Please give Geralyn's blog a read and feel free to post comments or ask questions, especially if you have ever considered incorporating these wonderful tools into your child's educational plans.
- Updated Health Care Guidelines
- The NDSS has published an updated set of health care guidelines from the American Academy of Pediatrics. The Down Syndrome Health Care Guidelines follow and individual’s development from birth through adulthood and provide information about potential health concerns at each stage. For more information please see the NDSS web site.
- Interesting Story
- Interesting story concerning the federal government's hiring policy. Visit http://www.whitehouse.gov/blog/2011/10/14/hiring-people-disabilities to read more about this unique policy.
- Marple Newtown Swim Team's Special Olympian Is a Champion In The Water
- Ronald Nagel, son of Mr. and Mrs Nagel, is featured in this inspiring piece published in the Marple Newtown Patch. The article talks about his life long love of swimming and his achievements with the Marple Newtown Swim Team. You can view the entire article here.
- "21 ACT" PACKAGE
- The 21 Research Resource Act will expand and intensify Down syndrome programs of the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to create an infrastructure of Down syndrome tools, including a Down syndrome contract registry, Down syndrome research database, and Down syndrome biobank. These research resources will further strengthen the research being conducted on Down syndrome across the country and better equip our research community with the tools necessary to facilitate their research. This bill also establishes a Down Syndrome Consortium with NIH to facilitate the exchange of information and make research efforts more efficient by integrating the perspectives of key stake holders. Follow this link to the NDSS website for more information and to act.
- The House 2012 Federal Spending Plan is Devastating for People with Disabilities and Will NOT Reduce the Deficit
The Arc.org, a national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families, reported that last week, House Budget Committee Chairman Paul Ryan (R-WI) released his Fiscal Year 2012 spending plan (known as a budget resolution). This plan pulls the plug on people with disabilities, seniors, students, and the middle class to pay for tax cuts for millionaires by targeting Medicaid,
Medicare, Discretionary Programs and Health Care Reform. If this changes are allowed to proceed it is believed that people with disabilities could be denied:
- health insurance coverage
- home and community based services
- supportive housing
- job training
- and much, much more
The House of Representatives will vote on the Ryan budget plan this Friday, April 15. We must let them know that this plan is just plain wrong for America. Please call your Representative this week. Call toll free: 1-866-922-4970. If the line is busy, please enter your zip code in the “call now” box located on the Arc.org's website to obtain the District Office phone number.
Below is a sample of what you can say to your Representative:
- I am a person with a disability or parent/caregiver of a person with a disability. (Briefly describe your situation, if you like.)
- The Ryan budget plan will take funding from people with disabilities to pay for tax cuts for the wealthiest Americans. And it does almost nothing to reduce the federal deficit.
- A Medicaid block grant would be devastating for me/my family member.
- Please vote against the Ryan budget proposal.
For more information please visit this web page setup by the Arc. Thank you!
- Interesting Blog Post
- Interesting Blog Post about a boy with Down Syndrome and his unexpected revelations to his mother as observed by casual onlookers. Click here to read the post.
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- August 22nd, 2013
- 2013 Summer Picnic at the Willows.
- September 12th, 2013
- Board Meeting / Shirley and Yuhan Bishar's home - 7pm
- September 15th, 2013
- 2013 Down Syndrome Day at the Zoo
- September 16th, 2013
- 2013 Golf Outing Benefiting SODELCO Special Olympics.
- September 26th, 2013
- RMM / Open Forum 7:30PM Hancock Church
- November 9th, 2013
- Down Syndrome Day at the Flyers.